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Thread: My husband was diagnosed on 4th Dec ☹️

  1. #11
    Forum Member Lynne K's Avatar
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    I believe that PIP is available even if your husband is still working but it's a mine field and he might have to go to interviews and be offerred a lower rate. Speaking with a specialist benefits advisor is advisable in your husbands situation. I can only speak of my own experience. I applied for PIP and ESA immediately after I gave up working. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  2. #12
    Forum Member Kayleigh's Avatar
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    The government has information on its website about PIP and ESA (links are below) Also, at the end of the first page about PIP, there is a link to video guides about PIP.

    https://www.gov.uk/pip

    info about ESA:-
    http://https://www.gov.uk/employment-support-allowance
    Last edited by Kayleigh; 14th January 2019 at 23:32.
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  3. #13
    Forum Member Kayleigh's Avatar
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    MNDA has information in its website about getting Benefits Advice, link is below:-
    https://www.mndassociation.org/getti...nefits-advice/
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  4. #14
    Forum Member Kayleigh's Avatar
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    Re: Carer's Allowance - here is the link to the information on the gov.uk website:-

    https://www.gov.uk/carers-allowance
    Last edited by Kayleigh; 14th January 2019 at 23:54.
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  5. #15
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    Hello Claire,
    I am so sorry to hear of your husband's diagnosis. We are Cambridge too. You will get all the info from the Cambridge centre and from the wonderful people on this forum. If you would like to pm me I would be happy to talk about anything.
    Best wishes and hugs
    Fru xx

  6. #16
    Forum Member Terry's Avatar
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    Hi Claire and welcome to the forum,

    I guess that you have digested all that info and acted on it.

    I won't confuse you much more but it would be good to get referred to the wheelchair services and the Mnda did have a specialist to help speed up the process but I don't know if they do now.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  7. #17
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    Just a +1 for the care and help available at the Arthur Rank and Addenbrookes in Cambridge, theyre fantastic!

    Dr Allen and all associated practitioners have been A+ for my dad

  8. #18
    Forum Member Terry's Avatar
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    I'll second that Hardcastle;

    Do you ever go the the Cambridge Mnda meetings?

    Love Terry

  9. #19
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    Thanks

    Quote Originally Posted by Hardcastle View Post
    Just a +1 for the care and help available at the Arthur Rank and Addenbrookes in Cambridge, theyre fantastic!

    Dr Allen and all associated practitioners have been A+ for my dad
    Thanks Hardcastle, we too are under the care of Dr Allen and the team at addenbrookes/Arthur rank and agree that so far they have been brilliant. Unfortunately I have been aware of the work they do at Arthur Rank since both my mum and my Nan passed there in the last few years from cancer and the staff there are amazing.

    I wish you and your Dad all the best x

  10. #20
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    Wow such wonderful response, thank you all for the very useful information I am indeed as Terry suggested slowly digesting and researching it further, I am a little overwhelmed by how much there is to sort but slowly and surely I will get it done x

    I will definitely keep checking into the forum for support and advice as this long and winding road progresses x

    All the best all x

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