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Thread: New Member - Husband Passed Away in October 2018

  1. #1
    Forum Member
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    Jan 2019
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    New Member - Husband Passed Away in October 2018

    My husband was diagnosed in January 2014. He passed away last October (2018) so I guess we were lucky.

    I don't know if anybody else experienced how I felt, but I shied away from anything related to MND. From the moment of receiving his MND diagnosis, the disease became central to our lives and I hated it.

    Now I feel an overwhelming need to connect with others who know exactly what we've been through, hence me enrolling with this forum.

  2. #2
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Location
    England
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    450
    Hello DH,

    Welcome to the forum. I am sorry to hear that your beloved husband has passed away. Please accept my condolences.

    It is understandable that you would like support, as it is never easy to cope with the loss of a loved one. I am not in exactly the same situation as you, as I have not been a carer of someone with MND. However, having been diagnosed with MND, I know how devastating this diagnosis can be for the person who is diagnosed and for their family.

    From the moment that someone is diagnosed with MND there is a lot to come to terms with and a lot of adjustment to make. Life is never the same again, but like many people on this forum I try to live life as fully as I can. I try to carry on doing as much as possible for as long as possible.

    I realise that my diagnosis is as devastating for my loved ones as it is for me. The impact of my diagnosis will probably continue for them long after I am no longer here. I hope that memories of the the happy times I share with my family will be a great comfort to my loved ones in the future. I hope that you are able to find comfort in remembering many happy times you shared with your husband.

    I expect that there are many people on this forum who are going through similar experiences and emotions as yours, due to caring for or having cared for a loved one with MND. You have come to the right place for some friendly support. You may also wish to consider having some bereavement counselling, if you haven't done so already.

    When a loved one passes away, it may seem like our World has completely shattered, but bit-by-bit we piece our lives together so that we can have some happy times again, just as our loved one would want us to.

    Please feel welcome to post on this forum again, as much or as little as you like. I send you my love and best wishes.

    Kayleigh x
    Last edited by Kayleigh; 18th January 2019 at 16:44.
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  3. #3
    Forum Member Lynne K's Avatar
    Join Date
    Nov 2017
    Posts
    450
    Welcome DH and well said Kayleigh. Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  4. #4
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,272
    Hi DH and welcome to the forum;

    You can contact Mnda connect directly and/or find your local Mnda branch and speak to them and see about if you want to meet with them.

    Hugs, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  5. #5
    Forum Member
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    Jun 2018
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    25
    Quote Originally Posted by JulieW View Post
    My husband was diagnosed in January 2014. He passed away last October (2018) so I guess we were lucky.

    I don't know if anybody else experienced how I felt, but I shied away from anything related to MND. From the moment of receiving his MND diagnosis, the disease became central to our lives and I hated it.

    Now I feel an overwhelming need to connect with others who know exactly what we've been through, hence me enrolling with this forum.
    so sorry for your loss. you are incredibly brave coming on here and telling us your story. to me that is a giant step in your recovery. well done xx

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