Page 1 of 3 123 LastLast
Results 1 to 10 of 21

Thread: Finding comfort

  1. #1
    Forum Member
    Join Date
    Feb 2019
    Posts
    2

    Finding comfort

    Hi all, I was diagnosed September 2017 mnd/als. I was having an emotional day when my son suggested this forum, so glad I dipped my toe.! Thanks guys.

  2. #2
    Welcome Dawn!

    You'll find a wealth of information and support here.

    Doug

  3. #3
    Forum Member
    Join Date
    Jul 2018
    Posts
    191
    Welcome Dawn. My Husband was diagnosed July 18 with same type

  4. #4
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Location
    England
    Posts
    462
    Hi Dawn,

    Welcome to the forum.

    There is a lot to come to terms with due this diagnosis, and I still get emotional about things sometimes. However, since joining this forum, I have found a lot of friendly support from the wonderful people here. We help each other out with support and advice, as much as we can.

    Hopefully, by now, you are receiving regular support from NHS professionals eg a specialist nurse, occupational therapist, physiotherapist, speech and language therapist and dietitian.

    Please don't be shy about joining in on this forum as much as you like.

    I hope you are having a lovely weekend.

    Best wishes,
    Kayleigh
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  5. #5
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Location
    Newark on Trent
    Posts
    2,046
    Hello Dawn and welcome.

    Many of us have emotional days and we sometimes need to have a rant. This is the place to do it as we understand the difficulty when dealing with MND. You will find support, advice and occasionally humour to relieve the pressure.

    Best wishes and keep in touch.

    Barry
    Iím going to do this even if it kills me!

  6. #6
    Forum Member Lynne K's Avatar
    Join Date
    Nov 2017
    Posts
    455
    Hi Dawn. Welcome to the forum. As you will see by my tag lines I was diagnosed November 2017 so pretty near to when you were diagnosed. I'd seen a neurologist 10 or 12 months earlier and ought to have had tests organised then and got an earlier diagnosis. I agree with previous posts that we all have emotional melt downs now and again, but more so at the beginning of our MND journey. I look forward to chatting with you. Take care, Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  7. #7
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Location
    Dublin
    Posts
    2,699
    Welcome Dawn, glad you found the Forum - bravo son

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  8. #8
    Forum Member
    Join Date
    Feb 2019
    Posts
    2
    Thank you for all your kind words, it's a great forum. I'm very fortunate to have a great family to get me through this, even better knowing I'm part of this forum family too. X
    Last edited by dawn c; 9th February 2019 at 15:09.

  9. #9
    Forum Member Pinkelle's Avatar
    Join Date
    Feb 2017
    Location
    Weymouth
    Posts
    555
    Welcome Dawn. This forum really helps me. It's good to chat and ask advice from people who get it x

  10. #10
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Location
    England
    Posts
    462
    Hi Dawn,

    It's great to hear that you have lots of support from your family.

    Please don't hesitate to ask us for support and/or advice, whenever you like. We 'chat' about a range of issues affecting our lives - and sometimes we go 'off topic', with subjects like our favourite music and the 'Six Nations Rugby'.

    Very best wishes to you and your family,
    Kayleigh x
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •