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Thread: Advice on motor neurone disease please

  1. #21
    Forum Member
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    Feb 2019
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    Thank you all for your kindness, it really helps.
    He has a bad chest infection which affects his breathing etc. He's on antibiotics so it's wait and see I think. I'm home and knackered. Back tomorrow.
    Friends have been great. It's hard not to sink very low. I've been close to my dad for years, particularly since my mum died in 1996. He's such a massive influence on my life and my biggest fan. I dread losing him but I know it has to happen.

  2. #22
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    Jul 2018
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    Hope that he has a comfortable night and is feeling a lot better tomorrow

  3. #23
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    Feb 2019
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    Thanks shrew. I rang the hospital and they said he had a peaceful night which is a massive relief. I.m taking a radio and photos in for him, plus some hand cream I've made to massage his hands/feet... If he'll let me. Any other ideas welcome

  4. #24
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    Jul 2018
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    great news. maybe some nice cordial?

  5. #25
    Forum Member Ellie's Avatar
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    Oct 2012
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    Good to hear your dad had a better night KLH, I hope the antibiotics work quickly for him and he continues improving.

    Have you a device, with headphones, for audio books/e-books? I find listening to books relaxing and takes my mind off other things. Obvs it shouldn't be an expensive bit of kit, especially if he's on an open ward.

    Has he wi-fi access?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  6. #26
    Forum Member Terry's Avatar
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    May 2012
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    That's good to hear KLH;

    Massaging his feet and hands is a great idea. I like my hair to be washed if I can't shower. Also it's lovely to have a fresh mouth, it might be possible for him to have a very small bit of a ice lolly/crushed ice drink in a day or two.

    Ellie's idea about audio books is a good one, you can get them from a library but check the discs as they can be damaged.

    Also see if you can get him transferred to a hospice as they are a generally a friendly place that are used to dealing with Mnd people. Many of us have been in their for a week or two.

    Fingers crossed, love Terry

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