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  1. #1
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    Botox !

    Hi Everyone, This seems such a silly thing to stress about but I was wondering if anyone has any experience of botox injections (Ok, not for facial frown lines !)

    My MND mainly effects my legs and my toes totally curl under. I can't get on socks or shoes easily and if I do it really hurts. I can still transfer from my wheelchair to the bed, loo or shower chair but it is really painful because of my curled toes. My physio suggested botox injections in my toes and I suppose this would relax the muscles. I just worry if it would relax them too much.

    Thank you,
    Love Debbie x

  2. #2
    Forum Member Terry's Avatar
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    Hi Debbie;

    I know something of the problem but mine is not so bad and I can live with it.

    I think that they would be injecting toes to straighten them up a bit. I have never heard of this before but it could make a lot of difference. It might work on my toes as they don't have much integrity. I also think that the muscles that control your toes are elsewhere.

    Maybe try it out on a few of them.

    Love Terry

  3. #3
    Hi Debbie

    Do discuss with your MND consultant beforehand.

    Doug

  4. #4
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    My daughter just had Botox injected into her salivary glands to hopefully cut down on excess saliva.

  5. #5
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    Hi Deb

    Be careful with Botox, I know people with ALS/MND use it to help with symptoms, but it is filled with toxins, maybe see if the side effects outweigh the benefits.

    My friend use to have Botox parties and women would come and get their faces injected with it. I would go to the party for the fun of a party, but never inject myself with the stuff. I'm not into that kind of stuff because I don't trust the pharmaceutical companies to be truthful where money and greed is involved and what the long term effects could be.

    Just a little info on Botox.

    CCxx

    ***
    What is Botox?

    Botox (onabotulinumtoxinA) is made from the bacteria that causes botulism. Botulinum toxin blocks nerve activity in the muscles.
    Botox is used in adults to treat cervical dystonia (severe spasms in the neck muscles), or muscle stiffness in the elbows, wrists, fingers, ankles, or toes. It is also used to treat severe underarm sweating (hyperhidrosis).

    Botox is also used in adults to treat overactive bladder and incontinence (urine leakage) caused by nerve disorders such as spinal cord injury or multiple sclerosis.

    Botox is also used in adults to prevent chronic migraine headaches in adults who have migraines for more than 15 days per month, each lasting 4 hours or longer. This medicine should not be used to treat a common tension headache.

    Botox is also used to treat certain eye muscle conditions caused by nerve disorders in adults and children who are at least 12 years old. This includes uncontrolled blinking or spasm of the eyelids, and a condition in which the eyes do not point in the same direction.

    Botox Cosmetic is used to temporarily lessen the appearance of facial wrinkles in adults.


    Important Information

    You should not use Botox if you have an infection in the area where the medicine will be injected. This medicine should not be used to treat overactive bladder or incontinence if you have a current bladder infection or if you are unable to urinate (unless you routinely use a catheter).
    The botulinum toxin contained in Botox can spread to other body areas beyond where it was injected. This can cause serious life-threatening side effects.

    Botox is made from donated human plasma and may contain viruses or other infectious agents. Donated plasma is tested and treated to reduce the risk of contamination, but there is still a small possibility it could transmit disease. Ask your doctor about any possible risk.
    .

  6. #6
    Forum Member Kayleigh's Avatar
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    Hi Debbie

    I've been searching the Internet for an alternative option to Botox for uncurling toes. There seems to be more available for uncurling fingers - but perhaps something like these would help?:-

    https://www.feetfeet.co.uk/products/...hoCtxgQAvD_BwE

    I havn't used them, but someone else on the forum might know if they are effective (it could be that they are good for separating toes, but not so good for straightening them).

    Love
    Kayleigh x
    Last edited by Kayleigh; 17th February 2019 at 01:02.

  7. #7
    Forum Member Terry's Avatar
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    Hi Debbie,

    I would not be worried much by infection as many people on the have had it.

    But as Doug says, ask what your specialist thinks. I don't think that it would be much good In stopping curling but it's just my uneducated opinion.

    Love Terry

  8. #8
    Forum Member Ellie's Avatar
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    Hi Debbie,

    Yes I had Botox to relieve muscle contractures in my feet and it certainly helped. It lasts about 3 months.

    The Physiotherapist in my MND Clinic is trained in giving Botox. It's important to have it done by someone who knows exactly what they are doing - how much Botox to use, where to inject etc.

    For the first time, they'll probably be conservative on the dose - I got half dose initially. And I had mine with an EMG needle to identify the best place in the muscle into which the Botox should be injected.

    If you have any questions, ask away!

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  9. #9
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    Thanks everyone for your advice and support.. what knowledge there is on here !

    I have tried to straighteners but it does make them ache. It was the MND consultant who first suggested it and the physio said it was worth a go. I have clinic in a few weeks so I will ask again. Apparently there is a doctor trained in botox there and initially they just do one toe.

    My toes have never had such attention. Shame it's not for a spa pedicure.

    Thanks for your replies,
    Love Debbie x

  10. #10
    Forum Member Kayleigh's Avatar
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    Hi Debbie,

    A good idea that they try the Botox out on one toe first, just in case there's an allergic reaction.

    I'm watching The Voice on ITV+1 at the moment. Sir Tom looks younger and more handsome every week! - I wonder if he's ever had Botox?LOL

    I hope you and your family are having a lovely weekend.

    Love
    Kayleigh x

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