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Thread: Oedema

  1. #11
    Forum Member Kayleigh's Avatar
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    Oh no, not cold weather again .... and hopefully it won't be icy! Enjoy burning some rubber next week Barry! (On the weather forecast this evening, there was a warning that 'Storm Freya' is approaching, but I think that the worst of it will take place tomorrow, and possibly into Monday in some regions).

    Kayleigh x
    Last edited by Kayleigh; 2nd March 2019 at 20:36.
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  2. #12
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    certainly wet and windy here tonight Kayleigh!

  3. #13
    Forum Member MNDConnect's Avatar
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    Hello Nigel,
    I was so sorry to hear that you have developed a build-up of fluid in your feet. This must be extremely uncomfortable for you. I was also terribly sorry to hear that both your GP and neurologist have been unable to help find a solution to this.
    I have found the following information on the NHS website, which may be helpful.
    https://www.nhs.uk/conditions/oedema/
    Although, I am conscious that this information only gives very general guidance and it the main it directs anyone with this problem to their GP.
    I do hope this helps Nigel.
    Kindest regards
    Ruth
    MND Connect

  4. #14
    Forum Member
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    Mar 2017
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    Thank you so much, Ihave an appointment with the GP and taking my wife so that we can be politely strong and firm! Thanks!

  5. #15
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    Terry, thank you for your amazingly good advice as always. I spoke with the MND nurse who said that the ones she is aware of are Flowtron but hospital use only. They are described for use to avoid dvt but I have seen other makes on Amazon where people have used them for oedema to good effect it seems. From your knowledge do you think the amazon ones are ok? Sorry to put you on the spot but just received a voucher for Amazon as a gift and may as well get on with trying to sort it myself than wait for the system to try and obtain something.

  6. #16
    Forum Member Terry's Avatar
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    Hi nigel,

    I bought some VERY cheap ones from China off of eBay but they were quite tight and a struggle to get over my unswollen ankles.

    I would see if you can borrow them from the hospital for a week or two, failing that see if you can go in and try them out, with the view of buying similar ones.

    See if your specialist can help if you don't get anywhere.

    If you do buy some, make sure that they will fit you.

    Love Terry

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