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Thread: Peg feed advice please

  1. #61
    Forum Member Ellie's Avatar
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    Oct 2012
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    Dublin
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    2,830
    Hi Will,

    I think you'll be OK at that weight to have a feeding tube fitted!

    If morbidly obese people can successfully have a PEG procedure, I'm sure your belly won't preclude you from having it

    You may be stuck with a long tube and not be able to have a low profile button if you need an internal length > 5cm, but that's about it.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  2. #62
    Forum Member Terry's Avatar
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    May 2012
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    UK
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    7,410
    Quote Originally Posted by Ellie View Post
    Hi Will,

    You may be stuck with a long tube and not be able to have a low profile button if you need an internal length > 5cm, but that's about it.

    Love Ellie.
    For the first time ever, you're wrong Ellie;

    Micky only goes up to 5cm but there are other makes that make them longer. They are not so well made as regard to there fittings and shape but they are available.

    Love TC

  3. #63
    Forum Member
    Join Date
    Jun 2018
    Posts
    31
    thanks people. I just can't shift any weight. which brings me to another question if you don't mind. I thought I saw on here that I could trousers with a Velcro flap at the front for using a bottle easier. any clues? my illness is beginning to bite now. legs went ages ago but arms are now very weak. bed and hoist ordered . bit early but I best get them sorted. my downstairs room is built and being decorated. I have asked for a bar in there

  4. #64
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Location
    England
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    615
    Hi Iron Will,

    You might find some useful information about trousers for gentlemen on the 'Clothing to make life easier' thread - the Able2Wear website is recommended by John (Jay Tee) on that thread:-

    http://forum.mndassociation.org/show...light=Trousers

    https://www.able2wear.co.uk/wheelcha...-trousers.html

    Hope all goes well with kitting out your new downstairs pad. Great that you want it to include a bar! (all round to yours to celebrate the grand opening - what time is happy hour?! )

    Best wishes
    Kayleigh x
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

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