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Thread: Advice on mattresses

  1. #11
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    What a quick delivery!
    Lynne, Mick sleeps on his side and his shoulders were getting painful, I guess because they are quite bony. He rang OT , she couldnt suggest anything. He emailed his MND nurse who sent a prescription to our GP for gabapentin but he didnt take any. Someone at work gave me a massive cuddle cushion, each of the legs is 9ft, he sleeps snuggled into this and at the moment he's sleeping ok

  2. #12
    Forum Member Gillette's Avatar
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    Well, I've just had my first night's sleep on the new mattress and it was great! I still awoke several times through the night but I fell asleep again very quickly. The box that the leads plug into was a bit noisy so my partner stood it on the floor instead of it hanging on the bed frame. That reduced the noise considerably. I am looking forward to using the seat cushion today.
    Dina


    Trying to keep positive, but not always managing.

  3. #13
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    This one is a little easier to turn on, by grabbing the headboard spaced out wooden pieces and pushing with my feet and body as best I can. But it's getting more difficult.

    Wendylett sheets are brilliant for helping you turn in bed. They have a silky centre panel and your OT should provide them. There is also a L shaped grab rail which fits under your mattress.

  4. #14
    Forum Member Lynne K's Avatar
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    Hi Miranda, thanks for reminding me about silky sheets. I bought 2 pr of pure silk and one pair of satin pj's a couple of months ago so these ought to slip nicely on a silky sheet. I'm going to search for a double sized with a silk panel my side or a full silk sheet. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  5. #15
    Forum Member Lynne K's Avatar
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    Sounds great Dina. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  6. #16
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    That sounds great Dina !

    I have grab rails and a bed frame and I can turn in the night but it's a struggle. I have to take the duvet off to move my legs with my arms. I usually go straight back to sleep but it wakes my husband as I have generally thrown the whole duvet on top of him !

    I am hoping it will be easier in warmer weather as no covers but I am going to talk to my OT
    about alternatives. The silky sheets sound great.

    Love Debbie x

  7. #17
    Forum Member Ellie's Avatar
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    Here's to another good sleep tonight Dina. If the unit on the floor is getting in the way, sometimes putting a folded towel between the bed frame and control unit absorbs the noise.

    Good luck with it!

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  8. #18
    Forum Member Gillette's Avatar
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    Thanks for the tip, Ellie.
    I've been using the cushion in my armchair today but I don't think I have it in the right position. I shall the District Nurse when she comes on Friday.
    Dina


    Trying to keep positive, but not always managing.

  9. #19
    Forum Member Ellie's Avatar
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    Hi Debbie,

    I wonder if a fleece blanket would be better for you, it's not as bulky as a duvet.

    I can only cope with a sheet and a fleece blanket, as I find the duvet physically too heavy on my body - mind you I cannot move, so your experience will probably be different.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  10. #20
    Forum Member Ellie's Avatar
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    Was it uncomfortable Dina or what did you feel was wrong with it?
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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