Results 1 to 5 of 5

Thread: man in a barrel syndrome

  1. #1
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Location
    London
    Posts
    292

    man in a barrel syndrome

    Good morning

    I spotted this term on Facebook - "man in a barrel syndrome"

    I know I should not really be on Facebook, but there you are.

    When I queried that the person posting that used it, he was obviously taken aback a bit and check it out and then said, apparently it is something that consultants regularly used to describe somebody who has lost the use of both arms.

    I gave up at that point that was troubled enough by this to check here whether anybody knew if this was correct?

    Apart from anything else, of course, it is not only men that get motor neurone disease

    Best to all

    Andy
    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.

  2. #2
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Location
    Dublin
    Posts
    2,993
    Hi Andy,

    Have to agree it is a horrible term to use

    Fortunately it's not something I have ever heard being used on this Forum or by anyone I've met in Clinics over the years.

    In MND terms, it'd mean someone had bilateral flail arm syndrome, with no other areas affected, which would be very rare indeed. It is a medical term which applies to non-MND conditions too, but seems callous and outdated to use nowadays.

    That Neurologist, like many others, could do with some lessons on How To Treat A Patient As A Person...

    Btw, nothing wrong with being on FB

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Location
    London
    Posts
    292
    Dear Ellie

    Quote Originally Posted by Ellie View Post
    Have to agree it is a horrible term to use
    Thank you

    Quote Originally Posted by Ellie View Post
    bilateral flail arm syndrome
    Ah! So that is the technical term

    From Mr Google I found this reference, which also mentions that insulting term in 2015;

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4461255/

    Best

    Andy
    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.

  4. #4
    Forum Member
    Join Date
    Nov 2016
    Location
    Kildare in Ireland.
    Posts
    50
    I also agree with the term being awful. I started mnd in one arm before it spread to the other. Also my neck muscles weakened so I would walk around with my arms very flat against my sides while looking down at my feet. My mnd nurse did mention the term to me but she also disapproved of a it.
    I do however understand why the term was used as that's exactly how I felt before I heard the term. I remember searching for the term and I think the term may have originated from polio patients who were in an iron lung. Looking at pictures I could see why it would be used in the past. I never got definite answers if this is how it originated however.

    Mick.

  5. #5
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Location
    London
    Posts
    292
    Good morning,

    Coming back to this after my recent visit to my own neurologist....

    Quote Originally Posted by Ellie View Post
    bilateral flail arm syndrome
    When asked, he offered the description "flail arm" without prompting - I knew he was one of the good guys!

    Let us hope this becomes more current in usage than it appears to be in the research community

    Warmly

    Andy
    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •