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Thread: Improving MND Care Survey - we'd like to hear your views

  1. #1
    Forum Administrator Admin_MND's Avatar
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    Oct 2015
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    Improving MND Care Survey - we'd like to hear your views

    We've launched our latest Improving MND Care Survey, focusing on people living with motor neurone disease and their carers.

    The survey asks questions around health, social and continuing care experiences. The information gathered will provide invaluable insight into the experiences of people and help to shape our future priorities and activities.

    Previous surveys have resulted in changes to Government policies, including the end of benefits re-assessments for those living with MND who receive the enhanced rates of daily living and mobility for PIP.

    If you are living with MND or caring for someone living with MND, we would encourage you to complete the survey as it really can make a difference by influencing the work we do. The more complete a picture we get of MND care in England, Wales and Northern Ireland, the better for people with MND and their carers.

    To request a paper version or if you require a translated or large print version, please contact MND Connect by email or call on 0808 802 6262.

    The last day for responses is 19 April 2019.

    We will share the findings of the survey later this year.

  2. #2
    Forum Member Lynne K's Avatar
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    Nov 2017
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    667
    I completed the survey yesterday. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

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