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Thread: Fungal and microbial ?

  1. #51
    Forum Member nunhead_man's Avatar
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    Hi Ellie

    Thank you again – perceptive as ever

    Quote Originally Posted by Ellie View Post
    Decreased elimination of riluzole means it builds up in the body which could, in theory, result in increased toxicity
    Interesting you should mention toxicity - I wearing my rose tinted spectacles assumed that keeping the stuff in my body for longer would mean that it was more effective!
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  2. #52
    Forum Member nunhead_man's Avatar
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    Good morning

    It looks like I'm coming to the end of my six months of theracumin and of course being as I am in sample of one I have no idea if it is doing me any good at all but my thought is I'll buy myself another six months to keep up the pressure as it were.

    Any thoughts team?
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  3. #53
    Forum Member Ellie's Avatar
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    Andy, I found after about month 2-3, my pain reduced dramatically - I used to get neck, shoulder and T-spine pain.

    My leg spasticity has reduced to a level where I've had to lower my dose of antispasmodic meds - I cannot say with 100% certainty that's it is due to taking Theracurmin but that is the only variable in my regimen of the past 10 years which has changed. And, in case you're wondering, the reduced muscle tone is very welcome indeed!! (I need to monitor my muscle tone as, if it goes too low, I may lose my functional spasticity which allows for standing transfers.)

    Love Ellie.
    Last edited by Ellie; 28th February 2020 at 10:53.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #54
    Forum Member nunhead_man's Avatar
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    Good evening Ellie

    Interesting that theracumin is possibly creating effect you mention.

    As for me here I've noticed that the fasiculation in my legs seems to have stopped almost entirely and that I was able to move my fingers on my left hand a bit for for a certain amount of time although that seems to gone away again.

    I know there is some suggestion that there are small reversals in MND contrary to the usual expectation that it is continually progressive so I would have no idea whether this was to do with theracumin or not.

    But hey ho keep I will keep on taking it in case it does provide me with some longer life
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

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