Page 6 of 6 FirstFirst ... 456
Results 51 to 53 of 53

Thread: Fungal and microbial ?

  1. #51
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Location
    London
    Posts
    489
    Hi Ellie

    Thank you again – perceptive as ever

    Quote Originally Posted by Ellie View Post
    Decreased elimination of riluzole means it builds up in the body which could, in theory, result in increased toxicity
    Interesting you should mention toxicity - I wearing my rose tinted spectacles assumed that keeping the stuff in my body for longer would mean that it was more effective!
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  2. #52
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Location
    London
    Posts
    489
    Good morning

    It looks like I'm coming to the end of my six months of theracumin and of course being as I am in sample of one I have no idea if it is doing me any good at all but my thought is I'll buy myself another six months to keep up the pressure as it were.

    Any thoughts team?
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  3. #53
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,656
    Andy, I found after about month 2-3, my pain reduced dramatically - I used to get neck, shoulder and T-spine pain.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •