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Thread: Symptoms

  1. #21
    Forum Member Lynne K's Avatar
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    They did an MRI on my spine. Told me that I had severe degeneration of spinal discs and discharged me. It wasted a year before I got an MRI on my head and muscle and nerve tests. Then my diagnosis. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  2. #22
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    I just had a muscle and nerve tests. That confirmed the diagnosis. No Mri but I had a inkling for a long time it was motor neurone
    Sheila

  3. #23
    Forum Member Lynne K's Avatar
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    These tests are horrid aren't they Sheila? I've had them three times so far. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  4. #24
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    Why did u have 3 tests lynne

  5. #25
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    Hi Lynne, I only had the nerve test done once, didn't like it much. That was in January. Makes me wonder how long I have had this disease. I see you were losing your balance for 4 years. It's a weird thing isn't it.?
    I hope you are keeping ok, like you say take each day as it comes.
    Love Sheila.

  6. #26
    Forum Member Lynne K's Avatar
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    Hi Sheila, my neurologist wanted me to have repeated nerve and muscle tests with 6 month gaps so that they could get an idea of my disease progression, and to help with a more particular diagnosis, so which type of MND I had. Since I'd been losing my ballance for approximately 4 years she suggested that my deterioration would be slower than some but that it was definitely ALS.

    The specialist who repeated my tests told me that there was no difference between the first 2 tests and very little with the 3rd. So it more or less confirmed a relatively slow decline. But I was warned that this could change and I could have periods of rapid decline.
    Love Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  7. #27
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    Hi Lynne!

    Thanks for your reply. I see now why you have had a few nerve and muscle tests. Let's hope it continues to be very slow for you. I didn't realise there were different types of the disease, but I think Ellie or Terry said about it. I have had a lot of twitching lately, I don't know if that is a bad thing. Even though I was diagnosed in January I still find it hard getting my head around it all. I suppose the best thing to do is to try and forget about it (as hard as that can be at times!)
    I hope you are having a good weekend. By the way! I haven't seen Pink on here lately, I do hope she is ok. Here I go again worrying about everything lol!! I expect she is having a break from the forum (sometimes that's a good thing.)

    Speak to you soon!

    Love Sheila x

  8. #28
    Forum Member Ellie's Avatar
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    Hi Sheila,

    Please don't worry about your twitching...

    Twitches are caused by the tips of nerves coming into contact with nearby muscles, sending an electrical signal which causes the muscle to twitch. (Twitches are also known as fasciculations, but twitching is easier to say and spell )

    With MND, we experience frequent episodes of muscle twitching because the signal from the nerves to the muscles become more disrupted. There is no evidence that suggests that muscle twitching is linked to how quickly the disease progresses.

    I know they can be annoying but I kind of miss them now - my nerves hardly ever fire signals these days

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze - No working limbs - No speech - Feeding tube - Overnight NIV.

  9. #29
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    Hi Ellie,
    THANK you for reply, and explaining all about twitching or fasisculation. I won't worry so much about them now.
    I hope you are having a good weekend.
    Love Sheila.

  10. #30
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    Hello to all I have posted before ré my symptoms I had MRI of spine nothing found I read my emg as got report it did say muscle in righ hand was denervation and fibs present all other muscles are OK no other detection of denervation so still have hand pain and now wrist neuro is now saying nerve conduction test again altho that was clear I think possibly another emg could other muscles b affected in this time fram something is wrong any advice welcome hope I am not being a pest thanks

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