When I was diagnosed, I assumed that my consultant added my details to the UK MND register, especially as he is one of the project leaders.
This may not have been the case. So two years on I've just registered.
The register seems to be such a basic first step in gathering information about our disease that I am surprised there are so few entries - about 1000 out of a population of ca. 5000 patients
Registration is quick and easy:
Doug
This may not have been the case. So two years on I've just registered.
The register seems to be such a basic first step in gathering information about our disease that I am surprised there are so few entries - about 1000 out of a population of ca. 5000 patients
Registration is quick and easy:
Doug
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