Page 7 of 8 FirstFirst ... 5678 LastLast
Results 61 to 70 of 75

Thread: Fed up

  1. #61
    Forum Member
    Join Date
    Feb 2018
    Posts
    56
    Great to hear you got the CHC - you deserve it

  2. #62
    Forum Member Pinkelle's Avatar
    Join Date
    Feb 2017
    Location
    Weymouth
    Posts
    586
    Im still here. Been through a whirlwind of emotions. After having a second chest infection my condition has deteriorated. I made a decision to come off my nippy and the doctors spoke to me about it. I have thought of nothing else. I really dont know what to do as ive been given a array of drugs which has relaxed me a little. Plus my breathing is not so strained due to a drug to dry up secretions. They said id probably keep getting more infections. Ive told my husband and he isn't keen on it. Im having a family meeting with the doctors on Friday. As ive had half decent day im confused. Then wben i cant communicate with the nurses when they are trying to rol me or put the wrong creams on etc i just feel like a piece of meat and would do it there and then. Does anyone else feel like this?

  3. #63
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,815
    Hi Pink,

    Sorry to hear that you have another chest infection but impressed that you seem to be able to breathe without nippy.

    I would have thought that the use of the nippy would help with any chest problems but it is a pain.

    Know what you mean about being treated like a piece of meat.

    Thoughts are with you.

    Love Terry

  4. #64
    Forum Member
    Join Date
    Jul 2018
    Posts
    325
    thinking of you Pink xxxx

  5. #65
    Forum Member
    Join Date
    May 2018
    Posts
    394
    Pink, I am so sorry for your situation and that you have another chest infection.

    My thoughts are with you.
    Love Debbie xxx

  6. #66
    Forum Member
    Join Date
    Feb 2019
    Posts
    197
    Dear Pink,
    Thinking of you, hope you feel better soon.
    Sheila x

  7. #67
    Forum Member Pinkelle's Avatar
    Join Date
    Feb 2017
    Location
    Weymouth
    Posts
    586
    Sorry Terry what I meant was to come off the nippy permanently and let nature take its course. X

  8. #68
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Posts
    978
    Hello Pink,

    Sorry to hear that you have got another chest infection and I hope you are feeling a bit better today.

    Thinking of you and hoping that the doctors and nurses are looking after you very well. Hopefully they are doing everything they can to make sure you are as comfortable as possible.

    Love and hugs
    Kayleigh x

  9. #69
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,310
    You’re in an unenviable position Pink, for which there is no easy solution.


    I’m glad the meds are keeping you comfortable.


    Wishing you strength for Friday’s meeting.


    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  10. #70
    Forum Member
    Join Date
    Sep 2012
    Location
    USA
    Posts
    3,329
    Hi Pink

    I don't know if you remember Lynne who use to be a forum member here, but she came off the nippy with the assistance of palliative sedation. A decision she made with her family and doctor.

    Wishing you much strength, comfort, and most importantly peace of mind.

    CCxox
    .

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •