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Thread: Awaiting diagnosis

  1. #31
    Forum Member Ellie's Avatar
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    He was probably looking out at you mowing the lawn smirking to himself thinking it's about time that woman got to know the lawnmower

    If you don't laugh at crisis times as these are, you just cry...

    Hope you can relax a bit over the long weekend with the family xx
    Last edited by Ellie; 18th April 2019 at 17:48.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  2. #32
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    Ellie,
    I’ve cried most of the afternoon now that just made me laugh! Funny I was thinking when I was mowing the lawn just how spoilt I was!
    No long weekend for me! The joys of being a nurse! 12 hour shift Saturday and Sunday but I’m off Monday and Tuesday. Hope you enjoy your break and thanks for the much needed laugh
    Kitty

  3. #33
    Forum Member Kayleigh's Avatar
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    Dear Kitty.

    I feel for you and your husband. I remember how frustrating it was to have to wait for test results. Hopefully your husband will get an appointment with a neurolgist very soon.

    Ellie's post made me smile and I'm glad that it cheered you up too.

    The amount of stress is we are under is ridiculous sometimes - but I try to have a laugh and joke with my family whenever I can.

    Although - my husband isn't too impressed when I 'jokingly' remind him not to miss the edges out when he is mopping the kitchen floor! He's not nearly as good at mopping as I was - but with my 'helpful' instructions (or as he says, 'bossy' instructions!LOL) he's getting much better at it! LOL

    I hope you are able to get some time to relax and rest. Hopefully, your family and friends are helping you out with things, as it must be extremely tIring if you are having to work shifts as a nurse as well as running your home by yourself.

    Love,
    Kayleigh xx
    Last edited by Kayleigh; 19th April 2019 at 13:33. Reason: Realised my spelling mistake - had put moping instead of mopping - husband is quite good at both though! LOL

  4. #34
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    Hi Kitty,

    Please dont apologise.. waiting for test results is agonising and extremely frustrating. It is hard to cope when you dont know what you're coping with. Also, you and your husband are not getting the practical and emotional support you need to make life easier and safer.

    Ellie's and Kayleigh's posts really made me chuckle too and I am glad it made you smile.
    Ellie's made me smile because I never cut the grass either and just to be contrary, now I really want to!
    Kayleigh, my husband never washes the corners of the floor either ! If I am feeling tactful I ignore it and dont look ! Like you we do laugh and joke about the strangest things.

    Kitty, I hope you manage some rest and relaxation after your long shifts. I know its easier said than done, but you do need to look after yourself.

    Love Debbie x

  5. #35
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    Debbie and Kayleigh,
    Thank you so much for your replies and your support. From your replies I’m gaining more and more useful insights to how my
    Husband is feeling and coping. Yes it’s good to laugh at things as well, humour can be a great medicine.
    On another note I emailed consultant re MRI results and have received a reply this morning saying a letter is being sent out to my husband today. Hopefully some news soon. Will keep you all updated and again thank you for all your kindness. Oh and Debbie every time I mow the lawn I will think of you and be thankful that I’ve had the chance to do it!
    Kitty

  6. #36
    Forum Member Terry's Avatar
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    Hi Kitty;

    It's good therapy, if you automatically think of funny things when doing something.

    I try to see the funny side of things and people.

    Love Terry

  7. #37
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    Terry,
    Thank you. I’m going to try to see the funny side of things more often, way better than crying. Just need a change in mindset. Thanks again for reply
    Kitty

  8. #38
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    Hi everyone,
    Hope you all had a nice Easter. My husband got a letter this morning re MRI results. . He has been referred now to spinal consultant as results indicate tension on the spinal cord. He has appointment on 29th May.
    Thanks again to you all for all your support and kindness
    Kitty x

  9. #39
    Forum Member Ellie's Avatar
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    Oh Kitty, that's good news insofar as there is a non-MND explanation for your husband's symptoms.

    Hope he gets full information and a treatment plan at the May appt.

    Best wishes to you both.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  10. #40
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    Thank you Kitty for letting us know about your husband's MRI,

    Although I know you have another month of uncertainty and worry, I have my fingers crossed for you that it is a treatable condition.

    Here's hoping you get some answers in May and until then take care of each other.

    Love Debbie x

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