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Thread: Awaiting diagnosis

  1. #51
    Forum Member Terry's Avatar
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    May 2012
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    UK
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    7,588
    Hi Chebs,

    Thanks for keeping us updated.

    Love Terry

  2. #52
    Forum Member
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    Jul 2018
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    303
    Keep us updated Chebs and look after yourself

  3. #53
    Forum Member chebs's Avatar
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    Feb 2018
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    Suffolk UK
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    Hi All,
    Thanks for all the lovely comments, I will stay in touch.
    talk soon xx

  4. #54
    Forum Member chebs's Avatar
    Join Date
    Feb 2018
    Location
    Suffolk UK
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    37
    Hi Kayleigh,
    Indi is now 10 months old and she's like a breath of fresh air... She goes dog training on Monday nights and she is coming on leaps and bounds.. Last weekend we went up to Wells-next-to-Sea (old childhood Memory) such a lovely time and indi loved running around the beach.. I took some sand from there for my memories.
    As its only a couple of hours up the coast it's somewhere I can return to.
    I'm having problems with my movement,stiffness,cramps..which then makes me tired.
    I have a meeting with the consultants begining of June, so hopefully get some answers
    love to you and yours
    Chebs xxx

  5. #55
    Forum Member
    Join Date
    Apr 2019
    Location
    N.Ireland
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    Hi All,
    It’s been a while since I have been on the forum and I promised I would update with any news. After months of waiting my husband finally got a diagnosis of spinal cord stenosis at c3,c4 which was causing all the symptoms. He had spinal cord surgery on Monday and is recovering well on spinal trauma ward. Surgery was to prevent any further deterioration with little hope of improving current symptoms. When he is able he will be moved to specialised spinal cord injuries unit for some rehab. I’m so sorry that I came to this group when I really didn’t belong but I’m very grateful for the support I received on here when I was at a very low point in my life. Thank you all for all your kindness shown and I sincerely wish each and everyone of you the very best on this most difficult journey you are all facing.

    Again thanks for your time
    Kitty xx

  6. #56
    Thanks for the update, I was wondering how you got on.
    Best wishes for the future.

  7. #57
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Location
    Dublin
    Posts
    3,058
    Hi Kitty,

    I'm glad a cause was found for hubby's issues but sorry the damage caused isn't fully repairable.

    It must be a huge relief that his surgery went well - operating so close to the spinal cord and all.

    Hopefully his rehab period goes quickly and he's soon back home where he belongs!

    Please don't feel bad about joining the Forum, you had legimate fears to do so. I'm glad you found support in your hour of need.

    Thanks so much for giving us an update and I wish you both well for the future.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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