Hi everyone.
My husband has had arthritis in his left leg for many years. Before Christmas his mobility was greatly reduced, resulting in him holding on to furniture/walls within the house and unable to mobilise very far outside of the home. Following a consultation with his orthopaedic consultant, and a review of xrays the consultant saw no change or deterioration in his hip due to arthritis, rather he found over brisk reflexes and muscle wastage indicative of something neurological. At this stage referral was sent for MRI. Since Christmas my husband has had tremor in right arm, difficulty gripping with right hand, a lot of weight loss. Currently 8 stone 4lb, height 5 foot 9 . He has a great appetite and eats high calorific foods but continues to loose weight.He has had his MRI and has been waiting 3 weeks now for results. It’s such a stressful time. He is a very positive person and will not even discuss the possibility of any diagnosis which is good for his state of mind. I on the other hand am a nurse and no matter how many times I try to dismiss MND from my mind it keeps popping back!
Family and friends don’t seem to understand. My husband is very good at hiding his illness eg if friends call to the house he doesn’t get up from the chair he is sitting in, he doesn’t accept a cup of tea ( he would spill it around himself). They then go away thinking he is fine and I’m left feeling as if I’m over reacting . Everyone seems to be burying their head in the sand. My husband is 55 , I’m 45 and we have 2 children, a boy aged 20 and a girl 16.
I have been reading through posts on here and I am so sorry so many people are going through this journey but it seems a very helpful and supportive group which I hope to benefit from. Thanks to anyone for taking the time to read my post.
Kittymcb
My husband has had arthritis in his left leg for many years. Before Christmas his mobility was greatly reduced, resulting in him holding on to furniture/walls within the house and unable to mobilise very far outside of the home. Following a consultation with his orthopaedic consultant, and a review of xrays the consultant saw no change or deterioration in his hip due to arthritis, rather he found over brisk reflexes and muscle wastage indicative of something neurological. At this stage referral was sent for MRI. Since Christmas my husband has had tremor in right arm, difficulty gripping with right hand, a lot of weight loss. Currently 8 stone 4lb, height 5 foot 9 . He has a great appetite and eats high calorific foods but continues to loose weight.He has had his MRI and has been waiting 3 weeks now for results. It’s such a stressful time. He is a very positive person and will not even discuss the possibility of any diagnosis which is good for his state of mind. I on the other hand am a nurse and no matter how many times I try to dismiss MND from my mind it keeps popping back!
Family and friends don’t seem to understand. My husband is very good at hiding his illness eg if friends call to the house he doesn’t get up from the chair he is sitting in, he doesn’t accept a cup of tea ( he would spill it around himself). They then go away thinking he is fine and I’m left feeling as if I’m over reacting . Everyone seems to be burying their head in the sand. My husband is 55 , I’m 45 and we have 2 children, a boy aged 20 and a girl 16.
I have been reading through posts on here and I am so sorry so many people are going through this journey but it seems a very helpful and supportive group which I hope to benefit from. Thanks to anyone for taking the time to read my post.
Kittymcb
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