hoist small enough to fit in any room
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Guest
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Guest
only as a concept - then I scoured the www to find one. luckily I found it. I wish you could see my completed MND facility
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Guest
https://www.handimove.com/ Neuro OT only have one crappy solution for MND. So I sacked them. We have designed and built a disabled bathroom based around a Closomat Palma Vita. We designed a commode that would integrate with the Closomat - `i get my bum washed by the closomat. no nappies, no bedpans, no pooing in a commode bucket. the last hurdle was getting out bed safely onto the commode. The surehands picks me up like a mother. picks up a baby. PERFECT.
I live upstairs, which is what my wife and I decided on the day of my diagnosis. I have music/TV/Xbox at my bedside - I have an ICU monitor for monitoring my etCO2 etc. etc..
I have a Nippy 3+ and nosepillow for NIV.
I have a tiny electric wheel chair to get me round upstairs, I can get into my office and pay bills, look atg my old toys and sell stuff on Ebay.
I train every day to keep as much muscle tone as possible - using TENS machines and EMS machines, I can tone up limbs that are totally denervated.
Only the hospital bed and active mattress have been supplied by the NHS. the rest I have bought and modified myself - I have spent £20,000 but it is an awesome facility.Last edited by Guest; 9 April 2019, 14:15.
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4E1772DC-10D2-4021-8774-EDB66BF7D4C0.jpg533BFBA8-FC6D-4437-BDFF-9C95F66CFC07.jpgD33D1E2A-763C-44BB-AE17-D6EE0EC5A84F.jpg61BCE869-C2F6-4EA4-98FC-3B2F3FB5C5F9.jpg The guy in the red shorts is me age 38, I used to do weight training and this is linked to ALS, I am also an aerospace engineer which is another link.Last edited by Guest; 10 April 2019, 13:13.
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