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Thread: "Wanted" New thread

  1. #1
    Forum Member Terry's Avatar
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    "Wanted" New thread

    Can we have a new thread called "Wanted", mainly for equipment.

    Many people now seem to be buying things that maybe others have spare at home or no longer need. I also see things advertised for free or very little money that would help others with Mnd.

    We would have to write a disclaimer, and best for people to describe what they want, the area they live, and their height and rough weight with regard to rise and recline chairs, etc.
    I know it's best to get a OT's advice and even get them to supply things but so often advice is slow and some items that we need now take months if they supply them at all.

    Whilst we don't want too many "Subject" Titles, I do think that this should be a stand alone one and can't be incorporated in the Equipment one.

    I have noticed that the bottom subject has not been used for over a year.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  2. #2
    Forum Member MNDConnect's Avatar
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    Hi Terry

    Thanks for your post. I'll flag this with the forum admins and get them to come back to you on this Terry.

    Best Wishes

    Rachel
    MND Connect Adviser

  3. #3
    Forum Administrator Admin_MND's Avatar
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    Hi Terry,

    Thanks for submitting this, we think its an interesting idea and something we will most definitely explore and speak to our technical team about.

    Many thanks,

    Forum administrator.

  4. #4
    Forum Member Terry's Avatar
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    Thanks Rachel and Forum administator;

    Please involve me in the wording of it should it happen.

    Love Terry

  5. #5
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    I would not ask an OT anything now

  6. #6
    Forum Member Terry's Avatar
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    Hi Jonboy;

    Are you trying to say that this is a good idea because it's not really about OT's.

    Love Terry

  7. #7
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    what I am saying is all the OT’s I have met are morons that know nothing about terminal illness - equipment - mangement of symptoms - realistic timescales, answering the phone, returning a call>..................actually most don’t care, following a script. My last OT offered me a riser recliner - ye gods and hells teeth .

  8. #8
    Forum Member MNDConnect's Avatar
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    Quote Originally Posted by jonboy53 View Post
    what I am saying is all the OTís I have met are morons that know nothing about terminal illness - equipment - mangement of symptoms - realistic timescales, answering the phone, returning a call>..................actually most donít care, following a script. My last OT offered me a riser recliner - ye gods and hells teeth .
    Hi Jonboy

    I'm sorry to hear that you've had so many problems with your OT. If you continue to have problems then please do contact us. We'd be happy to speak to the OT for you to try to help to resolve any problems. We are available either on freephone 0808 802 6262 or by email at mndconnect@mndassociation.org

    Best Wishes
    Rachel
    MND Connect Adviser

  9. #9
    Forum Member Julip's Avatar
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    My local MNDA branch has been amazing regarding support sourcing equipment.

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