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Thread: Riluzole

  1. #1
    Forum Administrator Admin_MND's Avatar
    Join Date
    Oct 2015
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    89

    Riluzole

    We are aware of a reduced supply of the drug riluzole, this is due to some manufacturers ceasing production.

    We are currently liaising with the Department of Health and Social Care and manufacturers who are working to speed up and increase production.

    It is important to know that riluzole is a NICE approved drug and people with MND are legally entitled to this. If you are turned away at the pharmacy as the ‘generic’ riluzole product is out of stock, your prescriber can make a prescription for a branded product e.g. Rilutek or Teglutik. Riluzole is the same whatever the brand prescribed though Teglutik is a liquid form which could be a change for some people.

    Whilst our MND Connect team are unable to offer any further information on where to source riluzole, they are available should you have any additional queries or concerns. The team can be contacted on 0808 802 6262 or via mndconnect@mndassociation.org

  2. #2
    Thanks Admin for the heads up!

    Doug

  3. #3
    Forum Member JAY TEE's Avatar
    Join Date
    Apr 2014
    Location
    Halesowen, West Midlands
    Posts
    226
    Admin thanks, my chemistry would not provide my Riluzole as said it would cost them 300 for four week pack. Luckily my local hospital provided it and had same update.

  4. #4
    Forum Member
    Join Date
    Jun 2018
    Posts
    18
    Thank you, Admin. My surgery said today that they have run out of generic riluzole, but are going to get some branded riluzole for me at around five times the price of the generic product.

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