New to site- Feeling so lost right now

Ellie

Forum Member

Join Date: Oct 2012

Posts: 12579
#16

18 April 2019, 15:01

Hi Spud,

Not everyone with MMN has the antibodies the blood tests are designed to detect so a negative blood test does not rule out MMN, hence the lumbar puncture / spinal tap test.

I am glad your mother is getting a 2nd opinion - MMN should have different NCS & EMG results than ALS.

Best to you both.

Love Ellie.

Last edited by Ellie; 18 April 2019, 15:15.

Diagnosed 2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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