Hi Guys,
The palliative team have tried all different kinds of chairs for her to try and none of them have been successful. I do believe they brought a brand new type of wheelchair/armchair thing for her to try and even that was painful after 5 minutes apparently.
We think that the nerve was damaged after a slip on some black ice a year and a half ago- the scans showed nothing, but it's been getting progressively more painful and caused her to have rapidly-progressing drop-foot ever since it happened.
The problem with nursing homes is that the staff have so many people to help that they cannot just get my Gran out of bed for a 5 minute trip around the home/in the garden, just to put her straight back into bed again- Gran seems to accept this and the nursing home staff have tried to get her out (though, I think that they believe she's putting on how much pain she's in- this is a woman that I've never heard complain about anything painful in my entire life, so I know that when she's in pain, it's a hell of a lot of pain indeed).
We had the riser/recliner at her house before she moved and she couldn't even sit in that for more than 20 minutes (and that was a month ago, so the pain has gotten worse by now, so I can see her point in wanting to just cut out the faffing and stay in bed, really).
It's distressing for me to see her in the bed all the time, but I don't think there's anything we can do. I just worry about if ever she needs to go to hospital for any appointments or to possibly have a PEG inserted- she won't last long en-route as she will have to go in a chair (the nursing home lifts aren't big enough to get the bed into, so she'd have no choice).
Doctors have been out to see her weekly since her move and none have prescribed any pain medication- she's on Riluzole, Baclofen and Quinine only.
Thank you both for your concern- it's really appreciated xx
The palliative team have tried all different kinds of chairs for her to try and none of them have been successful. I do believe they brought a brand new type of wheelchair/armchair thing for her to try and even that was painful after 5 minutes apparently.
We think that the nerve was damaged after a slip on some black ice a year and a half ago- the scans showed nothing, but it's been getting progressively more painful and caused her to have rapidly-progressing drop-foot ever since it happened.
The problem with nursing homes is that the staff have so many people to help that they cannot just get my Gran out of bed for a 5 minute trip around the home/in the garden, just to put her straight back into bed again- Gran seems to accept this and the nursing home staff have tried to get her out (though, I think that they believe she's putting on how much pain she's in- this is a woman that I've never heard complain about anything painful in my entire life, so I know that when she's in pain, it's a hell of a lot of pain indeed).
We had the riser/recliner at her house before she moved and she couldn't even sit in that for more than 20 minutes (and that was a month ago, so the pain has gotten worse by now, so I can see her point in wanting to just cut out the faffing and stay in bed, really).
It's distressing for me to see her in the bed all the time, but I don't think there's anything we can do. I just worry about if ever she needs to go to hospital for any appointments or to possibly have a PEG inserted- she won't last long en-route as she will have to go in a chair (the nursing home lifts aren't big enough to get the bed into, so she'd have no choice).
Doctors have been out to see her weekly since her move and none have prescribed any pain medication- she's on Riluzole, Baclofen and Quinine only.
Thank you both for your concern- it's really appreciated xx
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