Page 2 of 2 FirstFirst 12
Results 11 to 13 of 13

Thread: Connections between Anxiety attacks and MND

  1. #11
    Forum Member
    Join Date
    Jan 2018
    Quote Originally Posted by Ellie View Post
    Hi Spiersey,

    I wonder if these episodes are linked to his breathing becoming compromised? Has he had respiratory assessment recently?

    As our breathing muscles weaken, we can't breathe deeply which can lead to feeling panicky, claustrophobic and a sense there “isn’t enough air” which may explain his anxiety regarding these situations...

    Feelings of frustration are normal as we lose the ability to do tasks which even a baby can do, but I am sorry you’re bearing the brunt of your husband’s frustrations. As he has progressed rapidly, he must be very anxious about his and your future.

    Many people with an MND take an antidepressant and they say it helps sleep too, so maybe that’s an option? As is counselling - is he linked into a hospice?

    Unfortunately a significant percentage of us with ALS/MND will experience frontal lobe involvement, executive or non-executive impairment, which leads to behavioural and / or cognitive changes, sometimes subtle, other times more obvious. MND Clinics screen for any impairment.

    I hope you get some vital “me time” - caring for someone with MND on your own is very intense and difficult.

    Take care.

    Love Ellie.
    Hi Ellie, Do you know what the screening process involves? Mum no longer goes to an mnd clinc as her care has been moved to the hospice team as the clinic was too far for Mum to travel. Of think we're missing out on a lot of care now though as all mum gets is an appointment with the hospice consultant every 3 months where a physio or OT makes notes but never inputsanytjing yo the meeting the last time mum contacted the hospice for help she was told the hospice was predominantly for cancer patients and the time befor that she Was told sheconlu gets an appointment every 3 months and you have only just been to clinic ( 3wks previous). Don't they get how fast MND changes!
    So wish we could swap her care to the next nearest hospice.
    I wonder if some of mum's out bursts are impairment or just fuse she's in pain all the time may be.
    Difficult topic but good to know we're not out there on our own. Behaviour changes can be tough on us carers as well as our mnd worriers.
    Love to all x

  2. #12
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Hi Jude,

    Does your mum not even have an MND Nurse? She / he can be a good ally and liasion between professionals.

    Jude, it's heartbreaking to see you left coping with this on your own - please ring the MND Connect Helpline and see if they can help ease your worries and enhance your mum's care and quality of life.

    Re Cognitive and Behavioural Screening: this is what I undergo, it shouldn't vary much no matter where the MND person is.

    The screening is a two pronged approach - one for cognitive changes, one for behavioural changes.

    The cognitive test screens for language, fluency, executive function, memory etc and is completed by the person with MND.

    The behourial test is a questionnaire asking about the person's interest in themselves, in others and in hobbies, socialising etc. Both the person with MND and their spouse/adult child/carer fill out identical questionnaires.

    There is also a third test to check a person's mood and to screen for emotional lability. Again, this is completed by both the person with MND and by the person with them (i.e. by the person who has to put up with them!!)

    All of these tests can be done at home if necessary and I'm quite sure an MND Nurse could do them. It should not be necessary to attend Clinic just for screening...

    Take care.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #13
    Forum Member
    Join Date
    Jan 2011
    Jude - even though your mum no longer goes to the oxford clinic, you can still liaise with them by phone or email.
    Following Ellie's suggestion and my previous comment, I'm sure Rachael Marsden, the MND nurse, will help.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts