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Thread: zowzie

  1. #1
    Forum Member
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    Apr 2019
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    zowzie

    Hi , My Dad was diagnosed only a short time before he died, im wanting to find out more about the possible genetic link. Ive recently been told high levels in blood tests of vitamin B can be an indicator of cells not absorbing properly and have shown to be linked to MND, and wanted to find out more thankyou

  2. #2
    Forum Member Terry's Avatar
    Join Date
    May 2012
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    UK
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    Hi Zowzie and welcome to the forum;

    Sorry to hear about your dad.

    If there's no family history of Mnd it is unlikely that you will get it.

    You can get tested for some of the common genetic link genes.

    Best wishes, Terry

    Don't know about vitamin B levels.
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #3
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
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    England
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    712
    Hi Zowzie,

    Welcome to the forum.

    I'm sorry to hear that your Dad has passed away. I hope that you have support from family and friends at such a sad time.

    I understand, from reading information on the MNDA website, that an increase creatine kinase in the blood is an indication of muscle breakdown which could be due to MND - but I am not aware of a link between MND and vitamin b levels.

    I have posted a link to further details, below. (At the end of the webpage 'What is MND?', there are dropdowns to click on including 'Can MND be inherited?' and 'Which tests are included for MND?')
    https://www.mndassociation.org/about...t/what-is-mnd/

    Best wishes
    Kayleigh x
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

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