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Thread: Supplements

  1. #1


    Morning Everyone,
    Still getting my head around this whole diagnosis thing!
    Also still waiting for first appt at MND clinic after 6 weeks ( yes I just chased them up!)

    I am interested in self help, specifically in diet at the moment.
    I guess there will be lots of opinions here but Iím listening...


    What supplements/food are you guys all taking and feel make a difference-or not?

    Also any other ideas?
    Waiting with interest...

  2. #2
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Newark on Trent
    Hi marigold,

    You may find the link below of interest. Click on the information about supplements to find the evidence.
    Best wishes,
    Iím going to do this even if it kills me!

  3. #3
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Newark on Trent

    To answer your original question these are the supplements I take. Whilst there is no proof of the value, I believe they boost my immune system.

    Moringa 500mg x 2
    N-Acetyl Cysteine 600mg
    Turmeric 500mg
    Krill 500mg
    D3 5000iu
    Extra virgin coconut oil

    Best wishes
    Iím going to do this even if it kills me!

  4. #4
    Forum Member
    Join Date
    Dec 2017
    Hi Marigold
    I take the following supplements ,and since taking I don't feel as tired as I used to do, but I don't know if it's in my head or not but shall carry on with them.

    Omega 3
    Vitamin B12
    Folic acid

    I also take CBD oil and I can say that works on Fasciculation I still get them but no where as bad.

    I tried the coconut oil and it didn't suit my stomach , which is prone to IBS anyway

    Good luck with experimenting with them

    Love Chris
    Last edited by raymond; 23rd July 2018 at 07:14.

  5. #5
    Brilliant! Great reading here.
    Thanks so much for this.
    Has anyone else any thoughts or experiences?
    Really grateful,

  6. #6
    ...particularly interested in the B12 injections too!

  7. #7
    Forum Member TIANDB's Avatar
    Join Date
    Jun 2018
    Middle England
    Hi Marigold I will add my post from a similar thread.. Take care.

    TIANDB long List.
    Hi Guys I will throw in my TIANDB long List and you will have to google or web search for clues. I actually got most of other MND sites it is a long list but I have been slipping down this slope quite quickly. Not halted anything yet although I feel somewhat positive here goes Ho Ho
    I take in 4's so 1 x 4, 2 x 4 or sometimes 3 x 4 even 4 x 4 . And before bed x 4..
    Now I add the Honey to Tea and mix the teabags some Pepp/Nettle Pepp/Green
    MJ = Magic Juice ha

    Nettle Tea ( Anti O and full of good )
    Green Tea ( Anti O and good also )
    Earl grey Tea ( Anti O and Bergamot is Autophagy Enhansing )
    peppermint Tea ( Digestion friendly Helps with Inflammation )
    Peony Leaf White Tea ( Anti O Anti Virus & Inflammation )
    Coffee ( Energizing and positivity )
    Honey ( Anti O Repair Wound healing properties )
    EV coconut Oil a few T spoons a day ( The healthiest Fat IMHO )
    Vit C effervescent 1000mg MJ ( Repair )
    Energy effervescent MVit MJ ( Repair )
    Bacopa Monnieri ( Anti O Increases Neuron dendrites ? )
    Gotu Kola 420mg ( Anti O Increases Neuron dendrites ? )
    Creatine ( Muscle enhancement and Repair )
    Vitamin E ( Anti O Repair )
    Vitamin B Complex ( Energy and Repair )
    Zinc Gluconate 50mg ( Immune system and Energy )
    Curcumin Complex 800 mg ( Anti O and anti Inflammation )
    Iodine 225 mcg ( Repair )
    Selenium ( Repair )
    Milk Thistle ( Anti O Anti V anti Inflammation )
    Magnolia Bark 400mg ( Repair and Sleep Aid )
    Nicotinamide B3 500mg ( Repair/ brain health )
    Apple Cider Vinegar a few drops in my Effervescent MJ ( Good )
    Cod liver Oil 1000mg ( Vit D, A, Anti Inflammation )
    Alpha Lipoic Acid 400mg ( Repair )
    Beta Glucan 250mg ( Repair )
    Senna tab before bed. ( Occasional ) ( Digestion )
    Distilled Smart Water : MJ ( Removes Contaminants )
    Lions mane Before bed ( anti inflammation, Anti anxiety, repair )
    Lithium Orate before bed ( anti Anxiety )
    Melatonin Before Bed Occ ( Sleep Aid )
    Robitussin Dry Cough Medicine For whenever Coughing.
    A tot of Amaretto in my effervescent magic drink. MJ
    Occasional Bottle of beer.. ( Read somewhere Alcohol slight benefit for LMND )
    Robinson's sugar free Orange and pineapple: MJ
    Cooking. I use butter/ EV olive oil and EV coconut oil..( Just good )

    Take care all.
    Last edited by TIANDB; Today at 23:42. Reason: Updated 22/6/18
    Last edited by TIANDB; 3rd September 2018 at 20:45. Reason: Updated 2/8/18

  8. #8
    Thanks TIANDB
    That is indeed a comprehensive list!
    You must have large kitchen drawers��
    I am taking folic acid, B complex and milk thistle.
    I plan to add any more one at a time and will explore some more. Need to feel like I am actually doing something useful.
    Thanks again everyone

  9. #9
    Forum Member
    Join Date
    May 2018
    Thanks everyone for the advice about supplements.
    It's really helpful to know what people are taking and what seems to work. I guess we cant measure the effect that supplements and diet have on our progression but it's good to feel we are taking some control.

    I have always tried to eat healthily and keep fit but since I have been diagnosed I have fallen off the healthy eating wagon and am just eating what I enjoy.

    I probably needed to get a grip and go back to healthy eating and look at some of these supplements.
    Love Debbie x

  10. #10
    Forum Member Lynne K's Avatar
    Join Date
    Nov 2017
    I'm the same Debbie about comfort eating. I have put on weight. I joined a gym last week which has made me feel more focused and with some control in keeping my heart fit and ditto the rest of my body, the best that I can. Got a referral to the Beats scheme from my physio. I only take vitamin D in the winter as not enough sun to absorb it naturally. I don't take anything else but try to eat a balanced wide variety diet despite a bit of comfort eating, bread being a favourite.
    Last edited by Lynne K; 23rd July 2018 at 16:36.

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