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Thread: South London Branch

  1. #1
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    South London Branch

    Hi all, recently relocated to South London. Anyone have any contact details for the branch.
    Thanks Jerry

  2. #2
    Forum Member Ellie's Avatar
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    I posted details when you asked on a different thread.

    Glad you made it safely to the UK, Jerry - I was getting a bit worried about you!!! (Though I know you must miss those you left behind )

    There are several London MNDA Branches which are listed here: https://www.mndassociation.org/getti...anches/london/

    Click on your local one and their page will show all relevant details, including where & when they meet up.

    Best of luck in London.

    South London page is: https://www.mndassociation.org/getti...london-branch/

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member Kayleigh's Avatar
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    Hi Jerry

    Here is some information about the South London Branch, including contact details for Evelyn Hayward who should be able to give you further information about that Branch:-

    http://https://www.mndassociation.org/getting-support/local-support/branches/london/south-london-branch/

    http://https://m.facebook.com/mndsouthlondon/

    http://https://mobile.twitter.com/mndsouthlondon?lang=en

    (A few of us left you messages on the Edaravone thread, but understandably you might not have had time to read them yet!!).

    I expect you have got a lot of things to sort out, but hopefully you'll find the people at your local Mnda branch will help you to get settled back in England - although probably not so easy to get used to the cold weather again!! Lol

    Cheers!

    Kayleigh xx
    Last edited by Kayleigh; 3rd May 2019 at 13:21.

  4. #4
    Forum Member Kayleigh's Avatar
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    Hi Jerry

    Just a thought - Yvonne Maxwell is the local MND Adviser for South London, and so you might wish to contact her for advice e.g about what support and help should be available for you and how to access it.

    Just in case you need it, I have provided a link to further information about the local Advisers, including their contact details. If you scroll down to the end of that webpage, Yvonne's contact details are near the end of the list (i.e. 4th one up from the end of the list).

    http://https://www.mndassociation.org/getting-support/mnd-regional-care-development-advisers/

    Take care,

    Kayleigh x

  5. #5
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    Thanks Ellie you’re a star xxx

  6. #6
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    Hi Kayleigh, yes I’ve contacted Yvonne with no reply and tried to call but her phone is off. She could be on holiday and I wouldn’t blame her it’s freezing here xxx

  7. #7
    Forum Member Kayleigh's Avatar
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    Cool

    Hi Jerry,

    There should be an email address for her as well - but perhaps you are right about her being on holiday?! Also, I might be wrong, but it could be the case that the MND Advisers don't work at weekends or on Bank Holidays.

    The other option is to phone the MND Connect helpline because someone there might be able to answer any questions you have - also someone on the helpline can ask Yvonne to contact you. (They might also know if she is away on holiday). Perhaps give the helpline a call on Tuesday? (as I don't think it's open on Bank holidays or weekends).

    I hope you've got your thermals on Jerry! - its typical weather for a May bank holiday weekend!! Lol )

    Cheers!
    Kayleigh xx

  8. #8
    Forum Member nunhead_man's Avatar
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    Hi Jerry

    As I said elsewhere I am a member of the South London branch committee, so please feel free to contact me given what you need.

    Please note, I have been trying to contact Yvonne myself, but I understand she is having some time out, so she may not come back to until next week

    Warmly

    Andy
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

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