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Thread: PEG operation.

  1. #21
    Forum Member
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    May 2019
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    Quote Originally Posted by Ellie View Post
    Hi Peter and a warm welcome to the Forum nobody wants to join...

    Good to hear your feeding tube is in place for if or when you need it. Do you eat any food or just take the sip feeds?

    I use a pump for my feed and have been in various places with the pump quietly feeding me and nobody is any the wiser

    Love Ellie.
    I continue to eat normal foods I can still manage with my weak cough and swallow, but I have nearly useless arms and hands, so I'm experimenting with the spoon-feeder robot. This allows me to eat socially while attracting only mild ridicule, rather than pity!

  2. #22
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Location
    Dublin
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    2,991
    Quote Originally Posted by PeterW View Post
    ... I'm experimenting with the spoon-feeder robot. This allows me to eat socially while attracting only mild ridicule, rather than pity!
    Charge your viewing audience for the entertainment - don't miss out on making a few quid for the MND Fund
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #23
    Forum Member Gillette's Avatar
    Join Date
    Mar 2019
    Location
    Greater Manchester
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    196
    Hi Peter and welcome to the forum but sorry that you need to be here.

    It's good to hear that your PEG fitting went well.

    I am waiting for a date for my PEG to be fitted. There is a provisional date if it's to be done at Salford but there is some doubt about where it will happen because of my test results. It could end up being done at Wythenshawe. I have my fingers crossed for Salford. However, whichever hospital it is fitted by, I will be an in-patient from Monday to Friday.
    Dina


    Trying to keep positive, but not always managing.

  4. #24
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,538
    Hi PeterW,

    How are you getting on with the robotic feeder and what make is it?

    Best wishes, Terry

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