hi everyone i was diagnosed with pls on 9/5/18 and i also have lupus
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Hi Star,' welcome to our forum. PLS is better to have than ALS, but Lupus is a horror to have too. My daughter in law has that so I know a bit about it. Take care. LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
Hi Starburst 71,
Welcome to forum. It's a friendly place to be and you're surrounded by people who really do understand what you are going through.Dina
Trying to keep positive, but not always managing.Comment
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thank you Lynne im struggling to walk and my balance aint that good.need help to get out of bed and also my husband has to help me upstairs now luckily my lupus is controlled at the moment take care tinaComment
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thank you will try but at the moment its a struggleComment
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Hello Starburst and welcome to the forum.
I notice you have a Derby address and you are welcome to attend our Nottingham meeting held on the second Thursday of the month. If you are interested then please let me know and I will give you the details. We have a few people from Derby attending.
Regards,
BarryI’m going to do this even if it kills me!Comment
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