Page 11 of 12 FirstFirst ... 9101112 LastLast
Results 101 to 110 of 118

Thread: new member / single person

  1. #101
    Forum Member
    Join Date
    May 2019
    Posts
    70
    Cheers Gillette. My social worker has mentioned getting me help. It all depends on whether my OT / physio can help me get confidence to walk outside and access my car or not. Then I would have carers provided to help me get in and out of my car and go for local journeys to maintain my driving skills and get out of the house. But if I can't access my car then yes, maybe I could have the carers to help me with household tasks. But a part of me feels I have to stay as active as possible to maintain my nerves and muscles that aren't affected by MND yet and to counter my deep vein thrombosis. I am not wheelchair bound yet but I have used a specialist motability company who have taken me out in a wheelchair to visit my mum in her care home.

  2. #102
    Forum Member Gillette's Avatar
    Join Date
    Mar 2019
    Location
    Greater Manchester
    Posts
    687
    You’re welcome, Panniertank

    I understand your wanting to maintain nerves and muscles but you need to balance your physical needs with your mental health needs.

    Fingers crossed you and your OT/physio can improve your confidence so that you can soon go out and about.
    Dina

    Trying to keep positive, but not always managing.

  3. #103
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,929
    Pleased to hear that you more comfortable in bed, PT,

    I know what you mean about euthanasia, I might of done it years ago but it would be nice to guarantee that I could go with dignity.

    It's terrible about those disasters and killings.

    Love Terry

  4. #104
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Location
    London
    Posts
    431
    Good morning Panniertank

    I am pleased to see you looking more positive - I think I would be a much worse place if it were not for the fact that I presently live with my wife and daughter who are occasionally very upset and endlessly supportive. So I am impressed with how well you are doing.

    My recipe for movement is to keep myself moving in as many joints and bits of me that I can I keep flexible but I do not overdo it in the way that I used to - I was looking back at my logs the other day and realised that there were over ten years where I rode my bike more than 15,000 miles in a year, including several years where I rode what we call 24-hour events at the end of the season where one rides competitively as far as one can in twenty-four hours.
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

  5. #105
    Forum Member
    Join Date
    May 2019
    Posts
    70
    Thank you all. Gosh Andy, 15000 miles a year on a bicycle is incredible. It's more than I used to drive my car every year even with my roughly 20 mile commute to work and back, 5 days a week!!

  6. #106
    Forum Member
    Join Date
    May 2019
    Posts
    70
    Oh no. I've had 5 nights since my medication changes ,without restless leg syndrome and panic attacks whilst in bed ( but still bad insomnia ). But just now I've had a panic attack again. It is so hard to explain but I am tossing and turning in bed and don't feel comfortable or settled in any position and my body panics and forces me out of bed. Or maybe I am genuinely wide awake and that forces me out of bed. Even though my insomnia is still bad I felt positive and relieved about the panic attacks in bed ending. But now,as ever my health conditions are winning again to ruin my life.

  7. #107
    Forum Member Gillette's Avatar
    Join Date
    Mar 2019
    Location
    Greater Manchester
    Posts
    687
    Dear Panniertank, please remember you’ve had several nights without panic attacks. Just because you had one last night doesn’t mean they will become as bad as before.

    You’ve done brilliantly since seeing your GP, hang on to that. You can do it, Panniertank.
    Dina

    Trying to keep positive, but not always managing.

  8. #108
    Forum Member
    Join Date
    Feb 2019
    Posts
    243
    Hi panniertank
    Sorry to hear about your panic attacks, but try your best, you are doing the best you can.
    Sheila

  9. #109
    Forum Member
    Join Date
    May 2019
    Posts
    70
    Thank you Gillette and Sheila.

  10. #110
    Forum Member nunhead_man's Avatar
    Join Date
    Jul 2017
    Location
    London
    Posts
    431
    Good afternoon panniertank

    I can only second what Sheila and Dina have said, and perhaps add that you could ask your GP to see if there is anybody who could talk to you about your panicking and what underlies it it might be what you need to stop it happening?

    Having said that, I do feel for your circumstances although there is little else I can do
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •