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Thread: Nervous about tomorrow

  1. #11
    Forum Member
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    May 2019
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    Thanks for all your support. It went very well. They were friendly, helpful and gave a lot of good advice. They don’t feel that it is foot drop that led to his falls, but more likely were caused by a long-standing back problem. Most importantly from my point of view is that I have a local contact who I can get in touch with in case of any problems.

  2. #12
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
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    Dublin
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    Glad it went well Polly - having that contact should give you a small bit of confidence.

    Does your husband wear an AFO, ankle foot orthosis / brace to help his foot drop? Or maybe it came up during the visit and it's in hand.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #13
    Forum Member
    Join Date
    May 2019
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    Ellie, the physio got him to do various things with his feet, and as his movements were so strong, it is very unlikely to be foot drop. But the back problem is twisting his pelvis and affecting his walking. She doesn’t think a brace is needed. We are waiting for an orthopaedic appointment.

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