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Thread: Hands free drinking in bed?

  1. #1
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    Hands free drinking in bed?

    Hi everyone, I'm Emsterand hoping you lovely people can give me a steer in the right direction for a friend and their wife who are struggling . I'm looking for something that will hold a cup in an upright position close to the chin so that the head come forward to suck from a straw. It's for someone who is in a profiling bed so I guess some sort of cup holder mounted on a stand. There seem to be lots of things to hold phones and tablets but not drinks! A Hydrant bottle was tried but he just didn't have a strong enough suck. The OT has been asked but she doesn't seem to know what to do now the Hydrant bottle has been unsuccessful. So any ideas/suggestions would be great. Thanks in advance

  2. #2
    Forum Member Terry's Avatar
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    Hi Emster and welcome to the forum;

    I believe that if the hydrant bottle is raised so that it's higher than the head, it will just flow out when the end is bit. I can't guarantee that but someone said it did when I last suggested it.

    If they can actuate the valve by biting it and suck it could be at the same level and if not it would have to be higher. Do make sure of the flow before hand.

    Good luck and get back to me either way as I'm sure there is a way of holding a cup and then using a fixed straw glass or using a "Safesip" cover.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #3
    Forum Member Ellie's Avatar
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    Hi Emster,

    Just some thoughts...

    A water bladder - it may be too invasive as it's 'worn' rather than be to hand, so to speak. And IDK if the rate of delivery of water would be OK.

    A microphone stand on which to mount a drinking bottle - the stand can be bent up & down, in & out.

    A drinking cup with a bite valve rather than a conventional straw.

    Does he have access to a speech and language therapist who may (should have!) solutions. Does he have a feeding tube for easy hydration?

    Best of luck getting him sorted.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #4
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    I know there are other drinking cups with long straws that don't require a strong suck to get them to work as they are presently looking into one of these for my dad - may be worth asking the OT, afraid we are faced with so many equipment options and changes I can't recall the name of this one

  5. #5
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    Hi Terry, Vicky and Ellie - Thankyou so much for your thoughts. I talked to my friend's wife and she said he is on thickened fluids which meant he had to bite and suck with the Hydrant raised and it was too difficult. I think the water bladder would have the same problem.
    Apparently the SALT seems to think it's the OTs job to find equipment to support the cup. The OT is apparently stumped but still looking into it. Unfortunately it's not a specialist neuro service, general community I think. He has declined a PEG in the past and to be honest his wife has said that the Palliative Care Dr advised he is too frail to have it done now. So she is holding a cup with a straw for every sip - and bless her although they have carers for the heavy stuff - it's exhausting. And he'd like to be independent. Such a bloody awful situation in do many ways :-(

  6. #6
    Forum Member Terry's Avatar
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    Hi there,

    If you go into ebay UK, and look for, 360 Gooseneck Table Bed Clamp Stand Holder Mount For iPad Tablet Flexible Arm UK

    You would have to adapt it to hold a cup etc but it might do.

    Love Terry

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