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Thread: NurOwn

  1. #1
    Forum Member nunhead_man's Avatar
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    NurOwn

    Good morning,

    I was nagged from Patients Like Me to post an update so I went back for an infrequent visit and saw this....

    "NurOwn uses MSCs harvested from the patient. MSCs are precursor cells that have the ability to differentiate into various cell types. NurOwn’s technology encourages MSCs to develop into cells that secrete neurotrophic factors (NTFs) that promote the growth of nervous tissue. NTFs can also help nerve cells survive through their own neuroprotective function"

    Having done a search on this forum I see Ellie commenting that this was in third stage trial and there seems to be some new law in the USA, which allows particular patients to use drugs that are in testing or something?

    Has anybody here gone down the NurOwn route?

    I see from here - https://alsnewstoday.com/nurown/ - that the 3rd stage trial is still ongoing.

    Presumably, this is something more than just randomly injecting stem cells into somebody's spinal fluid?

    Warmly (vote for me as an MND trustee)
    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.

  2. #2
    Forum Member Ellie's Avatar
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    There is a Right-To-Try law in the U.S. Andy which allows for people with a terminal illness to try non-FDA approved drugs, once they've undergone Phase 1 Clinical Testing.

    AFAIK, Brainstorm, who make NurOwn, have not participated in this scheme - pharmas are not obligated to make their drugs available under the Right-to-try law - but have given the drug treatment, free of charge, to one person with ALS in the US, who was a driving force behind the law.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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