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  • Gillette
    Forum Member
    • Mar 2019
    • 710

    #16
    Originally posted by Ellie View Post
    Dina, people always try to help a beached whale

    Do you think there's anything that could improve the hoist experience? Is it the sling?

    Big hug to you and don't beat yourself up for having a bad day/week or feeling sorry for yourself - it's par for the course really.

    Love Ellie.
    Thanks, Ellie,

    Yes, it's definitely something to do with the sling. I have lost much of my core strength so can't hold myself up in the belt-type sling and end up getting very sore in my armpits. Consequently, the OT has said the carers should use the hammock-like sling but I end up in all sorts of contorted shapes with my clothes askew. Uncomfortable in so many ways including making the immediate future seem bleak.

    I think another chat with the OT is on the cards...
    Dina

    Trying to keep positive, but not always managing.

    Comment

    • Gillette
      Forum Member
      • Mar 2019
      • 710

      #17
      Originally posted by Doug Carpenter View Post
      Hey, hey Dina!

      Absolutely no apologies needed.

      We're all in your debt for cheering us up this morning remember.

      As Ellie says, don't beat yourself.

      Try to relax. Here's another hug to help.

      Love

      Doug
      Thanks, Doug, you're a sweetie.
      Dina

      Trying to keep positive, but not always managing.

      Comment

      • Gillette
        Forum Member
        • Mar 2019
        • 710

        #18
        Originally posted by Lynne K View Post
        Big hugs from me Dina, plus one real one that I owe from when we met at Redbank the other week. Lynne x
        Thanks, Pal!
        Dina

        Trying to keep positive, but not always managing.

        Comment

        • Gillette
          Forum Member
          • Mar 2019
          • 710

          #19
          Thank you for those inspiring quotes, CC.

          I am so pleased that I screwed up my courage to visit this forum for the first time just three months ago. The support, encouragement and understanding that we all share is beyond price.
          Dina

          Trying to keep positive, but not always managing.

          Comment

          • Deb
            Forum Member
            • May 2018
            • 2179

            #20
            Thank you everyone for this thread because the emotional support and inspiring quotes show how we all understand each other.

            Dina, I am glad you found the courage to join the forum, just as I am pleased I did too. It's not a scary place it just makes everything real in the beginning.

            I love the humour on here too because we understand each others jokes and occasional dark humour. I am busy thinking of another "one for the ladies " post to get Doug, Terry and Barry looking !

            Virtual hugs to everyone this Monday morning.... The hugs are limitless !
            Love Debbie x

            Comment

            • Lynne K
              Forum Member
              • Nov 2017
              • 2614

              #21
              I've collected my virtual hug. Thank you Deb, Lynne
              Last edited by Lynne K; 24 June 2019, 12:54.
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

              Comment

              • Gillette
                Forum Member
                • Mar 2019
                • 710

                #22
                Originally posted by Deb View Post
                Thank you everyone for this thread because the emotional support and inspiring quotes show how we all understand each other.

                Dina, I am glad you found the courage to join the forum, just as I am pleased I did too. It's not a scary place it just makes everything real in the beginning.

                I love the humour on here too because we understand each others jokes and occasional dark humour. I am busy thinking of another "one for the ladies " post to get Doug, Terry and Barry looking !

                Virtual hugs to everyone this Monday morning.... The hugs are limitless !
                Love Debbie x
                Hi Deb,

                You're right about the support on here, it's amazing.

                I'm looking forward to seeing what 'one' you come up with 'for the ladies'!
                Dina

                Trying to keep positive, but not always managing.

                Comment

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