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  1. #1
    Forum Member nunhead_man's Avatar
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    update...

    Hi all

    My left hand and arm are now quite disabled - my hand and arm are restricted to a bit of pokey stuff with my stiff fingers and clasping things to my chest to be assisted with my right hand.

    Now I am beginning to lose control in my right hand as well.

    So 3 things are going on in the main;

    1) We are almost certainly going to move house, 5 years on from buying the one we are in, with all the cost and dislocation associated with that.

    My ranting about the failure of the market to properly identify houses that have been converted already for those with disabilities seems to be having some effect, at least locally, as we seem to have found a couple of properties which are not that local, but are possibly close enough - in fact, we are seeing one tomorrow

    2) I am beginning to think about eye gaze to use my computer system as I still make part of my living that way - and it does stop me getting bored!

    I think I have got access to some sort of NHS resources for this, but if anybody has any advice about the sort of kit that works on larger screens - I do not really want to go to a small screen for work use - that will be helpful

    3) I am standing for election as a trustee for the Association - I got lots of experience working for charities and acting as a trustee and also a practice of being involved in organisations - and there is still time until 3 July to vote for me!

    Warmly
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  2. #2
    Forum Member Ellie's Avatar
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    Sorry you've to move house Andy, it must be gut wrenching for you both.

    If you use Windows and have 150 to spare, you could do worse than to buy a Tobii 4C eye tracker and have a play around with it - it's what I use. FYI:

    Max Screen Size: 27 inches with 16:9 Aspect Ratio, 30 inches with 21:9 Aspect Ratio
    Operating Distance: 20 37″ / 50 95cm

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member Ellie's Avatar
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    Trustee Elections 2019

    Our very own Andy is standing in the upcoming Trustee Elections and it'd be nice to have a Forum Member as a Trustee.

    Voting closes next Friday, 5th July.

    Details: https://www.mndassociation.org/get-i...e-voting-2019/

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #4
    Forum Member nunhead_man's Avatar
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    Hi Ellie

    Quote Originally Posted by Ellie View Post
    Sorry you've to move house Andy, it must be gut wrenching for you both.
    Indeed, and thanks - more below on that

    Quote Originally Posted by Ellie View Post
    If you use Windows and have 150 to spare, you could do worse than to buy a Tobii 4C eye tracker and have a play around with it - it's what I use
    Not one of these then!

    https://www.amazon.co.uk/TrackHat-He...y&sr=8-2-fkmr1

    Thank you - I will invest and have a play.

    Some of the reviews suggest you need to be quite close to the screen for this to work at the moment as I stand at my computer, I am probably close enough I guess - what distance are you from your screen Ellie?

    Warmly
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  5. #5
    Forum Member Ellie's Avatar
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    Quote Originally Posted by nunhead_man View Post

    The minimum internal lift Dimension required is 790mm wide, 1120mm long.

    Does anyone know if this is right for a powered wheelchair?
    Hopefully someone with firsthand experience will reply but to me...

    The 790mm width is > enough Andy but the 1120mm length seems a bith tight to me. My XTR2 chair is 1160mm without me in it and the front of my feet protruding over the footrests adds to that. And the chair is longer if in tilt to any degree.

    I see the Salsa Mini is 1100mm but add in your feet and any tilt and you'd probably exceed 1160mm?

    Quote Originally Posted by nunhead_man View Post
    Umm, no, not one of those, cool looking though it is

    Head trackers are generally a lot less precise than eye trackers = much frustration and the trackers must be compatible with software which replicates a mouse, that one isn't. The Tobii has native Windows 10 eye control but also works with a few free open source programs.

    Quote Originally Posted by nunhead_man View Post

    Some of the reviews suggest you need to be quite close to the screen for this to work at the moment as I stand at my computer, I am probably close enough I guess - what distance are you from your screen Ellie?
    Usually I'm about 60cm away but sometimes about 75cm and it works perfectly. Proper calibration is very important to ensure precision.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  6. #6
    Forum Member nunhead_man's Avatar
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    Hi Ellie

    Quote Originally Posted by Ellie View Post
    Hopefully someone with firsthand experience will reply but to me...

    The 790mm width is > enough Andy but the 1120mm length seems a bith tight to me. My XTR2 chair is 1160mm without me in it and the front of my feet protruding over the footrests adds to that. And the chair is longer if in tilt to any degree..
    And thanks yet again - and - so 790 mm is wide enough, but 1120 mm is too short.

    So you are saying if the chair is tilted or you have long legs, which of course is no problem your sitting in the lift platform, say on the 1st floor, but the hole in the floor is only the size of this platform, so if your legs overhang the edge no go!

    Warmly
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  7. #7
    Already voted.

    Andy - could you manage Prime Minister in your spare time, please?

    Doug

  8. #8
    Forum Member nunhead_man's Avatar
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    Good morning Doug

    Quote Originally Posted by Doug Carpenter View Post
    Already voted
    If you mean for me many thanks

    Quote Originally Posted by Doug Carpenter View Post
    could you manage Prime Minister in your spare time, please?
    Strangely, I am involved in politics, but only at a local level and totally frustrated by this coronation thing going on in the replacement Prime Minister game - please do not get me started on this here!

    Warmly
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

  9. #9
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    Thanks for the update Andy, so sorry about you having to move house.

    I've voted too but I am liking Doug's idea about you being Prime minister ( as well as a trustee)

    Love Debbie x

  10. #10
    Forum Member Kayleigh's Avatar
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    Hi Andy,

    I agree, you are well worth voting for! You would make a great Trustee - not only because you have a wealth of relevant knowledge and experience but also because you are a very kind and caring gentleman who actively helps others affected by MND. Thank you for volunteering yourself as a potential Trustee and also for regularly joining in on this forum.

    I'm sorry to hear you and your family have to move. I hope everything goes as smoothly as possible for you and hopefully the viewing today went well.

    Love and best wishes to you and your family,

    Kayleigh xx

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