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Thread: MNDA Charity

  1. #1
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    MNDA Charity

    Hi folks, Id just like to say thanks to everyone who donated to my Birthday Charity Fundraiser on Facebook. We managed to get 1855 over the week.
    It was a great effort and Im happy to do this for MNDA.
    Unfortunately Facebook deleted my donate button 3 days before it ended for irregular activity!! Meaning I was donating for friends who were abroad.
    Regards Jerry ❤️

  2. #2
    Forum Member Ellie's Avatar
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    That's some amount of money Jerry - you're obviously a popular guy with many lovely friends

    Congrats on raising so much and on your birthday too.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
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    Hi Ellie, hope you’re well. What have you been up to ? Ive been down to Maidstone to see the family. Saw the neurologist yesterday at UCL and back in Monday for a chat about a PEG and respiratory check. Finally on Riluzole.
    Love Jerry x

  4. #4
    Forum Member Gillette's Avatar
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    Hi Jerry, that's a terrific amount of money you raised! Well done and, as an MND sufferer, thank you as the money will help us all in some way.
    Dina


    Trying to keep positive, but not always managing.

  5. #5
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    Well done Jerry for raising so much money.
    Sheila

  6. #6
    Forum Member Ellie's Avatar
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    Finally things are moving along for you Jerry - I hope Monday goes well for you.

    Tell you what mate, I'm struggling in the warm weather these days - IDK if it's the MND or that I'm getting old - can't imagine me in Thailand, but I love being outdoors in my trusty chair

    I've respite next week to let the family go away for a few days and give us all a break from each other!!

    Keep healthy and remember to get your bloods done regularly to monitor your liver enzymes, now you're taking riluzole.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  7. #7
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    Well done on the fund raising, all my family have done this recently and raised quite a bit too

  8. #8
    Forum Member Ellie's Avatar
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    That's great Shrew.

    It's lovely when family and friends get involved in fundraising.

    Best wishes to you and Mick.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  9. #9
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    yes even son in law raised money when it was his birthday

  10. #10
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    That’s an awesome amount you have raised. Brilliantly done Jerry

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