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Thread: A friendly warning!

  1. #1
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    A friendly warning!

    Hi everyone

    Since I fell 3 weeks ago I have been in pain and felt generally unwell. Doctors and the paramedics felt it was ligament damage and I felt unwell because of the pain and MND . On Friday I woke up and coughed up blood so to A and E where I was fortunately fast tracked by my GP.

    A CT scan showed blood clots on my lungs and an X ray showed my leg was broken in two places. There was also some underlying infection . I went between two hospitals and everyone was so helpful but they were cross I had not been given blood thinners earlier.They cant set my leg until my wheelchair has been adapted to have my leg straight.

    Just glad to be home now but I wish I had been more assertive and gone to hospital sooner.
    I guess it's really important not to attribute symptoms of ill health to our MND. I was feeling breathless, due to the blood clot but I thought it was the MND developing.

    Take care everyone and no more falls,
    Love Debbie x

  2. #2
    Forum Member Ellie's Avatar
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    Oh my days Debbie, you must have been in a lot of pain

    Yes indeed, a good message for us all - don't put all our ailments down to our MND...

    I wish you a speedy recovery and hope your wheelchair adaptation happens ASAP.

    Sending you a big hug.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member Gillette's Avatar
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    Hi Debbie,

    My goodness, what a good job they discovered what was happening throughout your body. It's understandable why you attributed the breathlessness to the MND but it shows how important it is to check. I hope your wheelchair gets adapted soon so that your leg can be set.
    Dina

    Trying to keep positive, but not always managing.

  4. #4
    Forum Member Kayleigh's Avatar
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    HI Debbie,

    Sorry to hear you have been through such a tough time. It must be good to be back home with your family and all your home comforts. I hope you feel much better very soon.

    Love Kayleigh xx

    P.S I was thinking about you today and wondering how you were getting on - I remembered you are a tennis fan while I was watching "John McEnroe: still rockin at 60" on BBC1 this afternoon. Worth a watch if you havn't seen it yet - especially, if like me, you are a fan of the tennis era when John McEnroe, Bijorn Borg and Jimmy Connors were the champions at Wimbledon!

  5. #5
    Forum Member Barry52's Avatar
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    Hi Debbie,

    I’m sorry to hear that your health has worsened following your fall but I hope the medics can ease your pain. Who would have thought that you need an adapted wheelchair to support a leg cast. I trust they see you as a priority and sort it quickly. Of course you realise that you will need a bigger turning circle with your leg stuck out so beware of bumping it.
    I thought it was only men who are reluctant to go to hospital but maybe it is living with MND that makes us all stoical.

    Barry x
    Iím going to do this even if it kills me!

  6. #6
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    Hi Debbie, oh so sorry to hear about your accident. You have been through the wars.
    I hope everything gets sorted out for you. And you make a speedy recovery.
    Sending hugs
    Sheila x

  7. #7
    Forum Member Boiler68's Avatar
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    Hi Debbie...you must have been in agony. Hope your leg heals quickly. Thanks for the warning actually-my husband is getting booked in at the dr tomorrow-couple of things we need to check out.

    Xxxx

  8. #8
    Forum Member Terry's Avatar
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    Hi Debbie,

    I am more likely not to go to doctors or hospital with things because of the extra strain it puts on my wife.

    Like others, I remember you falling but wrongly assumed you had recovered.

    Look after yourself, essentially the lungs.

    What bones have you broken in your leg?

    I do hope you quickly recover.

    Love Terry

  9. #9
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    Thanks everyone for your lovely comments.

    Just waiting for a leg support delivering for my powerchair before I have my leg set, otherwise i would be in a hospital manual chair, or have to stay in hospital ! On lots of meds to get the blood clots under control and they're monitoring it carefully.

    Barry's comment about being careful about needing a wider turning circle really made me smile. I have visions of spinning around in my chair with my leg in the air. Oh the Joys!

    Love Debbie x

  10. #10
    Forum Member Gillette's Avatar
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    Ooh, Debbie, you could use your supported leg as a jousting pole, or as a circular saw (if you spin at top speed!).
    Dina

    Trying to keep positive, but not always managing.

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