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Thread: Black humour, beware: Running out of options

  1. #1

    Black humour, beware: Running out of options

    Because, up to now, the progression of my MND has been fairly slow for which Im grateful, of course I used to joke with my GP that I might live long enough to die of something else.

    Well, those options were reduced by one today. Ive just had my annual cancer screening examination all clear after five years since the operation. So theyve discharged me.

    So bloody MND goes back to the top of the list!

    Mind you, there still remains the option of cardiac arrest during the passionate nightly embraces of a toned, blonde physiotherapist (preferably female). Must look into that!

    Just dreaming.


  2. #2
    Forum Member Gillette's Avatar
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    Mar 2019
    Greater Manchester
    Hee hee hee. Be careful, Doug, just the dreaming might be enough to bring on the option!

    Congratulations on the 5-year all clear.

    Trying to keep positive, but not always managing.

  3. #3
    Thanks Dina.

    Good point! Hadn't thought of that.

    Seriously though - many thanks.

    It all feels very wierd today.

    Big hug and fingers crossed about your grand-daughter.

    Doug x

  4. #4
    Forum Member Gillette's Avatar
    Join Date
    Mar 2019
    Greater Manchester
    Thanks, Doug. She needs to get a move on!

    Trying to keep positive, but not always managing.

  5. #5
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Very glad to hear you got the 5 year all clear Doug!

    - and please keep your heart rate nice and steady Mr Casanova !! .... otherwise I'll have to send Norah 'wrinkled stockings' Battey round with a large bucket of cold water to cool you down! Lol

    Kayleigh x
    Last edited by Kayleigh; 9th July 2019 at 21:10.

  6. #6
    Forum Member Lynne K's Avatar
    Join Date
    Nov 2017
    Great to hear of your 5 year all clear news Doug.

    I think that dreaming is somewhere we can be who we really are without this horrid limiting disease, and/or be who we want to be.

    I've recently reconnected with my dreaming in terms of awareness of it happening and a bit of control. I did this when I was younger. But I lost this over the years through sleep deprivation. Then I started napping during the day a couple of months ago. It seems to have either stimulated my dreaming, or else its been happening all along but I didn't know of it for years.
    Last edited by Lynne K; 9th July 2019 at 22:52.
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  7. #7
    Congrats on your all clear 5 year mark Doug

    Something to celebrate, it might not be your toned blonde physiotherapist but will get your heart racing...and not put you into cardiac arrest, I hope! LOL



  8. #8
    Thanks folks for your kind posts. Don’t worry Kayleigh, I’ll be careful!

    Seriously, one must be grateful for small mercies I guess.

    You’re right about dreaming Lynne. I think I’ve always dreamed – not that I can remember much. The trick apparently is, immediately on waking and still dozy, to tell yourself the dream and thus put it in conscious memory. My counsellor at the hospice tells me to write them down at once in a bedside notebook. Trouble is my handwriting is so bad then I can hardly read my own notes afterwards!

    I don’t think MND has affected my dreams much. They have always been mostly about very mundane things, clearly related to events the previous day or something that is significant in the near future. But they almost invariably have some bizarre twists or juxtapositions that couldn’t possibly happen in real life but which seem perfectly logical and unremarkable in the dream.

    It’s also true, at least so far, that I don’t seem disabled in my dreams. Although last night I couldn’t keep up with a group of people on a tour who were walking rather fast. But I’m certain I did not have my crutch or walker. Very odd!

    No physiotherapists of any hair colour or gender have figured thus far!



  9. #9
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Sorry Doug, IDK how I somehow missed this thread

    That's great news on being 5 years cancer free.

    That's one nail you can take out of your coffin

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  10. #10
    Thanks Ellie. No problem.

    I like the idea of removing coffin nails.



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