Hi Wailywoo,

No need to apologise, I was simply hoping to reassure you that we don't all have such a detailed diagnosis.

I'm so sorry that you are having such a difficult time. It can be so frustrating when someone refuses anything that might help. I know that I am sometimes guilty of saying no to something that would help. Although I have accepted that I have MND, I sometimes refuse things because they are "for disabled people" or "for old people". It's silly, isn't it? I have to have a bit of time to adjust or to find something that doesn't make me feel "disabled" or "old". Maybe your husband feels something similar?

Sending you a big hug.