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Thread: MND as a multistage process

  1. #1
    Forum Member nunhead_man's Avatar
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    MND as a multistage process

    From my Twitter feed from Kings I think

    Mind the wrap - it is a very long URL

    https://www.tandfonline.com/doi/abs/...nalCode=iafd20

    Warmly
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

  2. #2
    Forum Member Ellie's Avatar
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    Did you buy the article and read it Andy?
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    I've read only the abstract, but the Australian study seems to confirm quite nicely the six stage model that has emerged in recent years. The model itself harks back to cancer studies.

    Doug

  4. #4
    Forum Member nunhead_man's Avatar
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    Hi Ellie,

    Quote Originally Posted by Ellie View Post
    Did you buy the article and read it Andy?
    No, I did not - as Doug says above, it seems to hark back to the epidemiological** Doll (sp?) studies concerning the link between smoking and cancer.

    Err ....https://www.ncbi.nlm.nih.gov/pmc/art...038856/?page=1

    Also, as Doug says this model has been talked about in other places, for me at the Crick Institute, where the suggestion was being made that having one of the genetic variants of MND put you on the "top step".

    The researcher concerned, freely admitted on my questioning that he had no evidence for this statement but that it just seems logical!

    ** the branch of medicine which deals with the incidence, distribution, and control of diseases.

    Warmly
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

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