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Thread: Sam

  1. #1
    Forum Member
    Join Date
    Jul 2019


    Does anyone know of any current trials in the UK for MND - we cannot go on Mirocals as been taking Riluzole & the Arimoclomol Trial has now closed.

  2. #2
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Hi Sam & welcome.

    These links show current trials in the UK:

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Hi Sam and welcome to the forum;

    I don't know if you have read this link:-

    THis link might give you other ideas:-

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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