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Thread: Silverstone

  1. #31
    Forum Member Lynne K's Avatar
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    Hi Barry. I only just saw your message about your fall. Breaking 2 vertebrae must be extremely painful. I hope that you heal quickly. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  2. #32
    Forum Member Kayleigh's Avatar
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    I hope you are feeling a bit better today Barry. Hopefully the painkillers are helping to make you feel comfortable.

    Love and best wishes to you and your wife,

    Kayleigh x

  3. #33
    Forum Member Barry52's Avatar
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    Thank you all for the kind words of support and encouragement. I am starting to get cabin fever and if the weather holds then I will sit in the garden. Running out of happy juice (morphine) but I don’t want to depend on it so I will revert to codine.

    Love to everyone.
    Barry
    Iím going to do this even if it kills me!

  4. #34
    Forum Member Kayleigh's Avatar
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    Hi Barry,

    Sounds like a good plan to sit out in the garden tomorrow or another day, if you can. It's such a lovely time of year with many flowers in full bloom. I was sitting out in my garden today and the flowers were attracting a lot of butterflies - there were lots of small white butterflies and also a few colourful ones too (I think they were Admiral butterflies).

    Thanks for letting us know how you are getting on. Many of us are thinking of you and hope you will be feeling much better very soon.

    Love Kayleigh x
    Last edited by Kayleigh; 16th July 2019 at 21:41.

  5. #35
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    Sorry to hear about your fall Barry, I hope you feel much better soon.
    Sending best wishes
    Sheila x

  6. #36
    Forum Member Terry's Avatar
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    Hi Barry,

    Hope you are up and running around but I guess not. You probably don't want to hear this as well but please make sure you're not Constipated at all mainly because of the pain medication.

    Guess that you fell backwards onto something.

    I know you don't like to talk about your problems but we do like to know.

    Best wishes, Terry

  7. #37
    Forum Member Kayleigh's Avatar
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    Thankfully, we can usually rely on you or Ellie to warn us about the dreaded 'Constipation' TC! - and it's always very kind of you both to flag it up as an issue to be aware of, just in case we don't know about it.

    It's not good if we suffer from constipation and I didn't know that it was a possible side effect of painkillers until I read about it on the forum.I suppose I should always read the patient information leaflet that comes with all medication, but .. does everyone really always read all that smallprint? ...... and you'd have to pass me the magnifying glass first LOL - and as liquid refreshment while I am reading it, I expect glass of prune juice wouldn't be a bad idea!

    I hope you are taking things easy Barry and cabin fever isn't getting to you too much! If you havn't been able to get out into your garden yet, hopefully you will be able to soon. Dreary weather at the moment and so no sign of butterflies in my garden today - I was pleased to get a visit from a woodpecker though! .... whenever I see a woodpecker it always reminds me of Professor Yaffle - you and TC might be too young to remember that childhood TV favourite 'Bagpuss' from way back, or perhaps you were too old to watch it LOL! - and/or, most likely, you didn't have 'square eyes' like I did! LOL.

    A couple of my favourite Bagpuss memories (and, of course, featuring the most distinguished woodpecker on TV --Professor Yaffle! )....

    http://https://m.youtube.com/watch?v=QAaKSzqT0DU

    http://https://m.youtube.com/watch?v=045Hxh7IfCU

    ..... all part of my happy childhood memories of watching well-loved TV classics like Andy Pandy, The Magic Roundabout and Camberwick Green - but If you were to ask if I remember 'Muffin the Mule', then that would definitely be way before my time!

    Love to everyone,
    Kayleigh xx
    Last edited by Kayleigh; 19th July 2019 at 23:13.

  8. #38
    Forum Member Lynne K's Avatar
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    Kayleigh, you reminded me of the hundreds of times that I read Bagus to my children and did so off the top of my head for my grandchildren. 'Bagpuss dear Baguss, oh fat furry cat puss wake up and see the thing that we bring. I could go on, from memory but I'll spare you all.

    About painkiller side effects and instructions. I read every word of the instructions that come with any and all medications. Codeine causes me constipation but Tramadol, a similar opiate does not. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  9. #39
    Forum Member Barry52's Avatar
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    Thanks everyone for checking in on me.

    Yes the dreaded C has been troublesome and they gave me laxatives but I am reluctant to take them in case it has the opposite effect. I have increased my daily dosage of coconut oil and this seems to be working. I hope nobody is having breakfast.

    Kayleigh,

    I remember watching Bagpuss with my daughter and when I was a child we only had 3 channels in black and white.

    Love,
    Barry
    Iím going to do this even if it kills me!

  10. #40
    Forum Member Ellie's Avatar
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    Good to hear the coconut oil is working well, Barry.

    Keep up the recovery!

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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