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Thread: Flail arm

  1. #21
    Forum Member
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    Arms and hands now have limited movement.
    Speech deteriorated during last 3 years.
    Neck weakened during last 2 years.
    Legs are still good.

  2. #22
    Forum Member Ellie's Avatar
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    Oct 2012
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    Hi DD,

    Have you alternative ways of using your PC/tablet given your arm & hand weakness?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #23
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    Hi Ellie,
    I'm still using a regular laptop and iphone although i have eye gaze for when things get worse.

  4. #24
    Forum Member Ellie's Avatar
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    Oct 2012
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    Great, I was just making sure you wouldn't be left hanging !!
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #25
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    Ellie,
    Wow, 3660 posts.
    Do you own this site

  6. #26
    Forum Member Ellie's Avatar
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    Quote Originally Posted by Double D View Post
    Ellie,
    Wow, 3660 posts.
    Do you own this site
    Egads, nooo!!

    Just been around a long time and I am only in the halfpenny league compared to Terry
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  7. #27
    Forum Member Terry's Avatar
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    DD do use your Eye gaze so you get used to it a little.

    Yes Ellie, know your place.

    I talk mainly rubbish and you give educated posts.

    Love Terry

  8. #28
    Forum Member Shaun's Avatar
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    Jan 2020
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    Wiltshire
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    Hello DD,
    Thanks for letting me, so hopefully I've got a couple of years of golf left, have just enough grip on right hand,
    Never got faciclations in my arms but they have started in my legs over the last 6 months.
    Best wishes. Hoping you reach 6,000 + posts
    S

  9. #29
    Forum Member Barry52's Avatar
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    Mar 2012
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    Hi Shaun,

    As a former lover of golf I would love to play a round with you. My grip is strong but if I took a swing off the tee I would fall A over T lol.

    Barry
    Iím going to do this even if it kills me!

  10. #30
    Forum Member Shaun's Avatar
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    Jan 2020
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    Wiltshire
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    Hello Barry
    I'm not sure how I'm going to fair this season as my shoulder is playing up but determined to try, can always rely on ibuprofen and codeine to numb the pain, it worked last year.
    Whilst I was searching for charity golf days I came across challangingmda.org, they give grants for people to experience new challenges and experiences, just thought if you wanted an even bigger challenge after your abseil
    S

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