Hi everyone. Hope you are all as well as can be. My head is spinning with thoughts of mums care needs and was hoping some insight from you all would help!
Mum is struggling more to mobilise around her house - it’s often as if her feet are stuck to the floor and just will not lift. It’s taking her so much effort just to move and her hands are ‘curling’ and getting weaker too. She is still living alone in her semi detached house with a stair lift to get upstairs. We’re waiting on a council bungalow but nothing suitable has come up yet, plus she hasn’t been awarded medical priority yet so wouldn’t get the property even if she bidded for it anyway.
Carers come in three times a day but the times are not ideal nor is the level of care. Don’t get me wrong, they are lovely people but don’t do the extra stuff - tidying the pots away, making sure mum has a good scrub rather than a quick wash. Plus they are only there a few hours a day.
Options put to us are - paying for a private care company (mum has savings so pays for all her care), paying for a personal assistant where she can dictate amount and level of care more, or going into sheltered housing. I guess the other option is care home but nobody has mentioned this yet so hopefully that means she wouldn’t need this yet (?).
I’m just overwhelmed with the decisions needing to be made and, as I’ve said before, we never seem to be able to keep up with how fast MND progresses so I don’t feel like times on our side. I’m very conscious that mum lives alone and I think she struggles more than she lets on. Just don’t know what to do for the best. Thanks for reading.
Mum is struggling more to mobilise around her house - it’s often as if her feet are stuck to the floor and just will not lift. It’s taking her so much effort just to move and her hands are ‘curling’ and getting weaker too. She is still living alone in her semi detached house with a stair lift to get upstairs. We’re waiting on a council bungalow but nothing suitable has come up yet, plus she hasn’t been awarded medical priority yet so wouldn’t get the property even if she bidded for it anyway.
Carers come in three times a day but the times are not ideal nor is the level of care. Don’t get me wrong, they are lovely people but don’t do the extra stuff - tidying the pots away, making sure mum has a good scrub rather than a quick wash. Plus they are only there a few hours a day.
Options put to us are - paying for a private care company (mum has savings so pays for all her care), paying for a personal assistant where she can dictate amount and level of care more, or going into sheltered housing. I guess the other option is care home but nobody has mentioned this yet so hopefully that means she wouldn’t need this yet (?).
I’m just overwhelmed with the decisions needing to be made and, as I’ve said before, we never seem to be able to keep up with how fast MND progresses so I don’t feel like times on our side. I’m very conscious that mum lives alone and I think she struggles more than she lets on. Just don’t know what to do for the best. Thanks for reading.
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