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Thread: Ventilation

  1. #121
    Forum Member
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    Hi Dina

    Wishing you the very best. Sincerely hope you have all the proper care you need ready and waiting for you when you return home, also wishing you comfort, and peace of mind.

    Much love
    CCxox
    .

  2. #122
    Forum Member Ellie's Avatar
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    Hi Dina,

    I hope your meeting as well as possible and there’s some consensus as to what happens next.

    The mental impact of such life changing disabilities is very challenging indeed and can drain every last drop of self-esteem from a person.

    Positivity isn’t always achievable in these circumstances. Everyone deals with things in their way and at their own pace, nor is there a right or wrong way to cope with losing one’s mobility, independence and, dare I say, identity. I know I struggled with idea of the latter - I was fortunate to have responded well to counselling.

    Big hug to you.

    Love Ellie.

  3. #123
    Forum Member Gillette's Avatar
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    Hi everyone,

    Had a meeting with the social worker today, which turned into a mini discharge planning meeting. The result was that it was agreed that an application would be made by the hospital for Continuing Health Care funding...
    Dina


    Trying to keep positive, but not always managing.

  4. #124
    Forum Member Terry's Avatar
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    Hope that gets sorted soon Dina;

    Love Terry

  5. #125
    Forum Member Kayleigh's Avatar
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    Hi Dina,

    Good to hear that the hospital is submitting an application for CHC funding and hopefully it will be approved quickly.

    I hope everything is going OK with your new feeding tube. Do you have to wait a certain amount of time before you can start using it?

    Love Kayleigh x
    Last edited by Kayleigh; 11th September 2019 at 13:24.

  6. #126
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    Good question Kayleigh, I have been wondering the same thing.
    Love Sheila x

  7. #127
    Forum Member Ellie's Avatar
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    Kayleigh and Sheila,

    Once the feeding tube is in place, it needs to be at least flushed through with water every day.

    Some people will use it for feeding from day 1, many won't use it for feeding for some time, but may use it for extra fluid and/or meds, or not at all (though it still must be flushed daily)

    Love Ellie.

  8. #128
    Forum Member Gillette's Avatar
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    Hi Kayleigh and Sheila,

    I started using the PEG for nutrition 2 or 3 days after it was fitted. At the moment I am having bolus feeds to supplement what I am eating and also to make sure that I am properly hydrated. That flexibility suits me at the moment. I think I am near the point where I will need to have my medication through it, as well.
    Dina


    Trying to keep positive, but not always managing.

  9. #129
    Forum Member Ellie's Avatar
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    Good to hear from you Dina.

    Is your digestive system tolerating the bolus feeds well?

    I hope you're comfortable.

    Love Ellie.

  10. #130
    Forum Member Gillette's Avatar
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    Quote Originally Posted by Ellie View Post
    Good to hear from you Dina.

    Is your digestive system tolerating the bolus feeds well?

    I hope you're comfortable.

    Love Ellie.
    Hi Ellie,

    Actually I am finding the breakfast bolus is making me feel overfull and nauseous. They are reducing the volume of water to see if I can tolerate it better.
    Dina


    Trying to keep positive, but not always managing.

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