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Thread: Jude

  1. #1
    Forum Member
    Join Date
    Jul 2019


    Hi I was diagnosed a month ago after nearly a year, struggling to walk at all and still waiting for motorised wheelchair . Trying to keep cheerful with help of great family and friends.

  2. #2
    Forum Member Gillette's Avatar
    Join Date
    Mar 2019
    Greater Manchester
    Hi Jude,

    Welcome to this wonderfully supportive forum, but sorry you have been given the diagnosis. There is a wealth of knowledge, information and experience on here and people are happy to share those. If you have questions, or need to offload then this is a great place to do it.

    Best wishes,

    Trying to keep positive, but not always managing.

  3. #3
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Newark on Trent
    Hello Jude11 and welcome.

    Iím sorry to hear that you have recently received this diagnosis and your head must still be spinning. As Dina has said you will find support and advice here from our wonderful forum family, although it sounds like you have your family behind you. Positivity is a good friend on this journey so keep looking forward. You mentioned a power wheelchair and if you need help speeding up the process then I suggest you contact MND connect tel:08088026262

    Iím going to do this even if it kills me!

  4. #4
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Hi Jude and welcome to the forum;

    Sorry to hear of your recent diagnoses after quite a long period of uncertainly. Hope you get the equipment you need to live life better and safer soon.

    Please feel free to ask any question or just share things with us.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  5. #5
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    A warm welcome from me also Jude, even though I know you'd much rather you didn't have to join this Forum in the first place...

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  6. #6
    Forum Member Lynne K's Avatar
    Join Date
    Nov 2017
    Hi Jude. I'm sorry that you've had to join us on this horrid journey. As others have said you have found a great support resource here and non judgemental friends who are either on a similar journey and carers/family of MND sufferers. Good luck with getting a powered wheelchair very soon. The idea to ring MNDA is a good one. Take care. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  7. #7
    Forum Member
    Join Date
    May 2018
    Hi Jude and a warm welcome to the forum,

    I am so sorry for your diagnosis. I am sure you are still reeling from the shock, even if you have had symptoms for some time . It's good you posted because the forum is a place for emotional and practical support from people who really understand and as Dina said, there is a wealth of knowledge.

    It's great you have family and friends to keep you cheerful and stay positive. I hope you have news of your powerchair soon.

    Love Debbie

  8. #8
    Forum Member
    Join Date
    Feb 2019
    Hi Jude, and a warm welcome to this very friendly forum. Lots of help and advice on here.
    Take care

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