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Thread: riluzole - updated research

  1. #21
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Kayleigh, my kids are teenagers so I use abbreviations a lot - text acronyms and abbreviations are very useful for eye gaze users and for those with limited hand function
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  2. #22
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Hi Ellie,

    When I joined the forum I realised how behind the times I must be - not being up-to-date with text abbreviations etc. - I think I should get some tuition from the teenagers in my family!

    Kayleigh x

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