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Thread: Duty of care?

  1. #11
    Forum Member MNDConnect's Avatar
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    Hi Dina

    I am really sorry that my suggestions yesterday weren't helpful. If it would help, I'm happy to ring your social worker to explain the situation to them and see if we can come up with a solution. If you would like me to then please do feel free to send me a private message on the forum or email me at mndconnect@mndassociation.org.

    You can of course ring me again on 0808 802 6262. There are two of us covering the phoneline today so if I'm not the one who answers then please just ask my colleague to ask me to give you a call back.

    Best Wishes

    Rachel
    MND Connect Adviser

  2. #12
    Forum Member Kayleigh's Avatar
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    Hi Dina,

    So sorry to hear about the situation you are in due to Social Services letting you down very badly.

    I would have thought under the 'Care Act 2014', the Local Authority can't insist someone takes on the responsibility of arranging their own carers (unless that person has opted to receive 'direct payments' from their personal budget, because they want to arrange the care themselves).

    Even if I have interpreted the law incorrectly, it would be an unacceptable situation if a Local Authority says 'yes' you do have care needs BUT if you don't have the ability to organise the care yourself, then tough luck, that's your problem!

    Not everyone has the ability to organise their own carers and not everyone knows someone who can do the organising for them - and I thought that even if someone was 'self funding', the local authority had to offer the service of arranging carers for them, or at least help to find suitable care agencies etc (although, the LA can charge a fee for these services).

    Sometimes, CHC can be fast-tracked and so it might be worth checking at the meeting on Thursday if your CHC application can be. As CHC is funded by the NHS rather than the Local Authority, hopefully the provision of carers under that scheme is much more efficient!

    I hope things get sorted out for you quickly and carers are put in place for you very soon.

    Love,
    Kayleigh x
    Last edited by Kayleigh; 20th August 2019 at 20:40.

  3. #13
    Forum Member Barry52's Avatar
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    Hello Dina,

    I have just read about your predicament and like others I am appalled at how the system is failing to meet your needs. I hope the powers that be can fast track your application for CHC.

    By all means contact your MP but don’t expect immediate action. In my area we had a specialist neurological nurse who’s position was made redundant and several people with MND complained. The nurse would visit at home and assess the patient needs with prompt action. The MP wrote to the CEO of the regional health authority and following 3 letters confirming their investigation and 15 months later, the original decision to cease the role stands.

    I post below a link to NICE which may help when you argue your rights.

    https://www.nice.org.uk/guidance/ng4...ciplinary-team

    Hugs and best wishes,

    Barry x
    Iím going to do this even if it kills me!

  4. #14
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    Hi Dina,

    Like others, I am shocked at the lack of carers for you. It is totally unacceptable and extremely worrying, to say the least. You must feel so distressed, vulnerable and anxious. I am also very sorry about your fast progression at the moment.

    I really hope your application for CHC is fast tracked and you get some answers to this awful situation.

    Sending you hugs and thinking of you,
    Love Debbie x

  5. #15
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    Hi Dina,

    This is appalling - I am so sorry. We have quite enough to cope with - physical challenges and psychological ones - without the stress of feeling abandoned when your need for help is acute. I do hope one of the lines suggested pans out.
    Kate

  6. #16
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    Sorry to hear all this Dina, I hope it all gets sorted out for you. Sending hugs
    Sheila x

  7. #17
    Forum Member Gillette's Avatar
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    Hi Everyone,

    I had an appointment at Wythenshawe Hospital this afternoon. When they heard how things have been they suggested I be admitted and I agreed so thatís where I am for the time being.

  8. #18
    Forum Member Gillette's Avatar
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    Thank you for your support, everyone. I canít tell you how welcome it is.

  9. #19
    Forum Member Terry's Avatar
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    Hi Dina,

    I am sorry to hear that you are back there but hopefully your husband can recop and they will sort out a proper care package before you go home.

    Best wishes, Terry
    Last edited by Terry; 20th August 2019 at 23:59.

  10. #20
    Forum Member Kayleigh's Avatar
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    Hi Dina,

    It's probably good you had an appointment at Wythenshawe today because someone there might be able to get things organised concerning an urgent CHC application for you. Sorry you've had to be admitted into hospital though. Hopefully the doctors and nurses are making you comfortable and the food is ok.

    I hope social services realise the stress and worry you and your partner have been put through, due to their uncaring attitude and their failure to provide you with the carers you are entitled to.

    I was reading the Care Act 2014 today and was interested to find out that the Local Authority not only has a statutory duty of care towards you but also to your partner (as he is your carer). It sounds like social services have probably been failing in their duty of care where both of you are concerned, because the non-provision of carers could potentially have a negative affect his health and well-being, as well as yours.

    It's terrible that despite all the legislation and NICE guidelines, MND patients and their carers still don't always receive the respect and high standard of treatment and care they should be getting and are legally entitled to.

    Hopefully, the situation concerning your carers will be rectified very soon. I also hope you and your partner get much better treatment from social services from now on.

    Hopefuĺly your hospital bed is nice and comfy - I expect you could do with a good night's sleep, as today has probably been particularly tiring for you!

    I hope you have a restful sleep tonight and a relaxing day tomorrow.

    Love Kayleigh xx
    Last edited by Kayleigh; 20th August 2019 at 21:42.

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