Hello everyone
My name is Adam. I live in Manchester and I'm 32 years old. I was diagnosed with ALS on the 6th October 2017. I believe that I had been experiencing onset symptoms around March / April 2017.
I noticed that I was struggling to tie my laces, button my shirts, frequently dropping brews etc. I used to be an active person, frequenting the gym 4-5 times a week. But I noticed that rather than becoming stronger that I was actually becoming weaker. Fatigue was also increased, often having to fight to get out of bed.
I'm married. I have 2 young boys aged 6 and 11. The day I was diagnosed was also the same day my eldest became 10.
So here I am. Over 2 years from onset. Alot of tears. Alot of love. Amazing support from family and friends. A medical trial in America. Lots of trial and error.
Currently living in hospice whilst we agree what is best going forward. Not only for me but as a family as well.
If you are interested I have a PEG which is only used for rehydration and to administer medication. I use a cough assist usually once a day. I tried the nippy a few times but decided that ultimately it's not for me. I also have a grid pad using eyegaze which for me has been a lifeline. Enabling me to occupy my mind and keep in touch with friends and family.
I know that the above is brief but I have been reading posts on this forum for over a year now and I now feel ready to contribute. Ask anything and I will be as helpful as I can.
Thanks
Adam
My name is Adam. I live in Manchester and I'm 32 years old. I was diagnosed with ALS on the 6th October 2017. I believe that I had been experiencing onset symptoms around March / April 2017.
I noticed that I was struggling to tie my laces, button my shirts, frequently dropping brews etc. I used to be an active person, frequenting the gym 4-5 times a week. But I noticed that rather than becoming stronger that I was actually becoming weaker. Fatigue was also increased, often having to fight to get out of bed.
I'm married. I have 2 young boys aged 6 and 11. The day I was diagnosed was also the same day my eldest became 10.
So here I am. Over 2 years from onset. Alot of tears. Alot of love. Amazing support from family and friends. A medical trial in America. Lots of trial and error.
Currently living in hospice whilst we agree what is best going forward. Not only for me but as a family as well.
If you are interested I have a PEG which is only used for rehydration and to administer medication. I use a cough assist usually once a day. I tried the nippy a few times but decided that ultimately it's not for me. I also have a grid pad using eyegaze which for me has been a lifeline. Enabling me to occupy my mind and keep in touch with friends and family.
I know that the above is brief but I have been reading posts on this forum for over a year now and I now feel ready to contribute. Ask anything and I will be as helpful as I can.
Thanks
Adam
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