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Thread: Becoming a tad bored.

  1. #31
    Forum Member Kayleigh's Avatar
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    I expect all the girls love you in Tesco's too TC!

    Hugs,
    Kayleigh x

    P.S Don't forget to collect your clubcard points every time you shop in Tesco's! I like to save my points up to spend on lots of treats at Christmas.
    Fun fact: In exactly 4 months time, it will be Boxing Day!

  2. #32
    Forum Member Ellie's Avatar
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    Hi Dina,

    How are you holding up??

    Do you get any physiotherapy when you're in there? Don't want you seizing up in there or we'll have to send in some WD40 to you

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #33
    Forum Member Gillette's Avatar
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    Hi Ellie,

    Thanks for asking. The boredom has passed but today has been hard. On Saturday I started needing someone else to wash my face and brush my teeth and today I've started needing help with cutting up food. At the moment it almost feels as though every day some ability is lost.

    Yes, I've been having some physiotherapy. Phew! Just avoided the WD40!
    How are things with you?
    Dina


    Trying to keep positive, but not always managing.

  4. #34
    Forum Member Ellie's Avatar
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    I'm sorry you're going through this difficult stage of progression Dina. I think it's the toughest stage - the week on week realisation of function loss is terrifying.

    Once it's gone, you tend to not worry as much, which does sound strange. There's nothing else to lose...

    I am so used to being dependent on people doing everything for me now, it doesn't faze me but it was tough in the beginning.

    I remember my then newly independent 4y.o. cutting up my food for me and saying, "Now I can cut up your food mummy just like you cut up mine when I couldn't".

    I had visions of you as the Tin Man from Wizard of Oz, complete with oil can

    I am not liking this lakrk of it getting dark just after 9pm

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #35
    Forum Member Gillette's Avatar
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    Thanks for your support, Ellie. I can understand the logic of worrying less when it's gone.
    Dina


    Trying to keep positive, but not always managing.

  6. #36
    Forum Member Terry's Avatar
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    Hi Dina,

    We all have such drab life's, so what's happening in that exciting place?

    I'm at the gym overlooking a pool full of women, but yet to have coffee and my nut and fruit snack.

    Hope you are feeling well.

    Love Terry

  7. #37
    Forum Member Gillette's Avatar
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    Quote Originally Posted by Terry View Post
    Hi Dina,

    We all have such drab life's, so what's happening in that exciting place?

    I'm at the gym overlooking a pool full of women, but yet to have coffee and my nut and fruit snack.

    Hope you are feeling well.

    Love Terry
    Hi Terry,

    I have given the lowdown on the shenanigans at this esteemed institution in The Daily Dribble. *smiles innocently
    Dina


    Trying to keep positive, but not always managing.

  8. #38
    Forum Member Terry's Avatar
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    Hi Dina;

    Are you really that bored.

    Nice to get your hair done.

    Love Terry

  9. #39
    Forum Member Kayleigh's Avatar
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    Hi Dina,

    The weather seems to be much cooler now. I had to make a quick retreat from my garden yesterday due to a sudden downpour of heavy rain. Looks like the Summer is over then! LOL

    As the children are going back to school this week, it should be quieter in the shops during school hours - yippee!! - less queues and I can also enjoy a peaceful mid-morning cuppa in my favourite cafe without loads of screaming kids running around. LOL

    Well, I say peaceful, but it might not be that peaceful if I happen to be in the same cafe as TC playing his music to the cafe girls again! LOL

    I hope everything goes well with your PEG op tomorrow.

    Love and hugs,

    Kayleigh x
    Last edited by Kayleigh; 1st September 2019 at 16:58.

  10. #40
    Forum Member Terry's Avatar
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    Quote Originally Posted by Ellie View Post
    Great song TC but did you ever listen to its lyrics? Quite explicit to play to a bride-to-be, or maybe that was your last ditch plan to have her call off the wedding
    Love Ellie.
    No, I didn't listen to them, just the main bit. She was worried about things then and another lady their said that he was worried about losing her because you are gorgeous.

    That's why. I am surprised that it was not banned.

    Love Terry

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